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04-30-2007, 07:45 AM
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#1
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Member
Join Date: Mar 2007
Location: western NC
Posts: 17
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any advice for stomach cramps?
I just started the TCH club last Wednesday and since day 1 I have had intense intestinal cramping. No gas or diarrhea, just cramps from hell. Has anybody else had this experience? I'm not sure what to take. I called the Dr.'s office this morning, and the nurse is going to call me back.
desperate,
Annie
__________________
Diagnosed 02/27/07
Right mastectomy, 7 nodes removed, all negative
tumor size 0.9 cm: ER-/PR-, Her2+++
04/25/07 start 6 rounds of Taxotere/Carboplatin plus Herceptin
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04-30-2007, 08:00 AM
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#2
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Gosh Annie, so sorry you're having such a time of it. I don't know of anything over the counter that I would recommend before you talk with your care team, but maybe a heating pad set on low would offer some relief until you hear back?
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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04-30-2007, 08:07 AM
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#3
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Senior Member
Join Date: Jan 2007
Location: Media (Wawa to be exact), PA
Posts: 104
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Cramps
Annie,
So sorry to hear about your cramps.
I had some cramping but I realized that it was due to the constipation from the steroids. I ate tried eating a little fiber and the problem QUICKLY and pardon the expression explosively went away. How has your appetite been, do you think something you have eaten may have triggered it? Hope y ou feel better SOON!Keep us posted
Melinda
__________________
DX BC 12/06
tumor .9
Lumpectomy 1/8
Mammosite radiation completed 2/10
Stage1/Grade 1
clear Margins /Nodes Neg
ER+
IHC +2 Fish +
ONCO 23
Started TCH on 3/2 for 6 rounds of TC once every three weels and a year of Herceptin every 3 weeks -
Finished everything and now on Aromasin
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04-30-2007, 09:03 AM
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#4
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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I hope this doesn't sound silly, but which TC? I know that H is Herceptin...
Since I have already had Taxotere/Cytoxan and Taxol/Carboplatin, I am not sure which ones are considered TC! I doubt this info will help me answer your question, but I am just curious.
Hope you feel better soon! Cramps are horrible.
Thanks.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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04-30-2007, 09:31 AM
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#5
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Member
Join Date: Mar 2007
Location: western NC
Posts: 17
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Hey there!
I'm taking taxotere, carboplatin, and herceptin. I don't think that I'm constipated, because I've been pretty regular. I started taking some nexium this morning, so maybe that will help. This just sucks! I'm also taking care of my two-year-old girl who is being very demanding. Not much time for just lying on the couch. I can't even get her to watch a show for more than 5 minutes! Wah!
Annie
__________________
Diagnosed 02/27/07
Right mastectomy, 7 nodes removed, all negative
tumor size 0.9 cm: ER-/PR-, Her2+++
04/25/07 start 6 rounds of Taxotere/Carboplatin plus Herceptin
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04-30-2007, 03:52 PM
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#6
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Annie,
This is just a guess....but since you mentioned that you are chasing after your two yr. I am assuming that you are NOT post menapausal. I had TCH and I am post menapausal and did not experience cramping. Maybe the chemo is working on your hormonal level and casuing your body to react with the cramps?
I certainly do not know just a thought and hopfully your dr. will be able to
confirm this. I think the warm heating pad (if you do not have one) you can
also place a wet small towel in some cling wrap and then warm it up in the microwave for a few min. and place on your tummy. The cling wrap will hold the warmth in longer...be careful not to make it too hot.
It cannot be easy running after a toddler and having the TCH....at the same time. Make sure to drink and flush your system. Also some alieve for the cramping. Wish I could offer more
help...please let us know what your dr. says.
Sending you all good wishes,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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