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Old 04-26-2007, 07:55 AM   #1
Kimberly Lewis
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poison ivy on my lymph-node challenged arm - advise please

Hate to ask this trivial question but - I have some lymphedema on my side - not arm so am concerned about this appearance of poison ivy on my arm.. (bad side) I have never had it before and am wondering what to do other than not scratch! If anyone has any experience or advice please write! thanks, kim
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Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes

BRCA 2
positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara


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Old 04-26-2007, 12:39 PM   #2
Zoid
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Hi,

I suggest you call your oncologist. I don't know if poison ivy could be a big problem, but better to be safe.

-Susie
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Old 04-26-2007, 03:06 PM   #3
Mary Anne in TX
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Kim!

Are you sure it's not shingles?
ma
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Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 04-26-2007, 03:12 PM   #4
tousled1
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Kim,

If it's poison, you can do the oatmeal baths and I would highly recommend Ruhli-Gel for the itch. It's a gel that you buy over the counter and works better than anything I've ever tried.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 04-26-2007, 08:16 PM   #5
Linda
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I agree -- have it checked to make sure it's not shingles, then keep it clean (poison oak blisters can get infected) I'm a poison oak pro -- live in the midst of it and very allergic. I hate steroid creams, but for some people they help. I think the best thing is just to keep it clean and dry, and let it run its course, unless it's so bad you need steroids. Prevention is the key. If it is oak rash, you may be getting it from your pet! Find Dr. Brauner's soap -- that old hippie liquid soap you can get at any co op type natural food store. Any scent will do -- apparently it's soap, not detergent. Wash your dog with it, then put a big jug in your shower and wash hands, arms, etc, whenever you have been around plants and animals. It's a pretty mild soap and the only thing I know that easily removes the allergenic oak oil.
From Oregon, where poison oak is THE indiginous plant.
Linda
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Old 04-27-2007, 06:45 AM   #6
IRENE FROM TAMPA
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Smile Hi Kimberly

Last year I held a garage sale to benefit the 3-day breast cancer walk.
In preparing for this event, I had to go through tons of donated items some of which had been stored for some time.

A couple of days later my arm on my surgery side became very hot and red. I ended up having to stay in the hospital for 5 days with what they say was a Staph. infection. I did develope a rash on an area on that side that could have resembled what you describe. They said I had cellulistis.

Not to worry you but I would have your doctor look at it just in case. I was fine but if it is some type of infection you should be careful since we are more succeptable on our surgery side. They told me this was something that could have gotten in through my finger nails ever.

Let me know your outcome and wish you the best.
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1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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Old 04-27-2007, 06:56 AM   #7
Kimberly Lewis
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Thanks!!!!

I don't know what I would do without you guys! You make me able to look at things with lots of different views. I have a call in to the Dr. and waiting to hear. It is spreading and I really don't know what it is for sure I guess. I will have him look at it. Thanks so much. love, Kim
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Kim

Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes

BRCA 2
positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara


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