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Old 04-17-2007, 07:22 PM   #1
Lori S
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Join Date: Jan 2006
Location: Baldwin, Maryland
Posts: 15
Smile Great Book by HER2 Author

I would like to recommend a great book called "Take Off Your Party Dress" written by Dina Rabinovitch. Dina is also HER2 and in her book she shares her journey with breast cancer from diagnosis to mets. Her book was very inspiring to me and I could really relate to a lot of her experiences.

I highly recommend this book. Dina is taking the proceeds from this book and contributing them to cancer research. To find more information about Dina and her book you can check her blog out at:
http://www.takeoffyourrunningshoes.typepad.com/

Her book can currently be purchased at www.amazon.co.uk

Lori
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Aug '03 - diagnosed Stage III, Her 2 +++, ER - , PR-
Oct - Jan '04 - dose dense Taxotere (3 cycles) followed by A/C (5 cycles)
Feb '04 - L. Mastectomy, 15 nodes removed - 8 contained micrometastatic disease
Mar '04 - 4 1/2 weeks radiation
Apr '04 - started herceptin 52 weeks completed May '05
Dec '05 - Stage IV extensive lung mets to right & left lungs
Jan '06 - Xeloda 4 months til progression
Jun '06 - Jan '07 - Herceptin & Pertuzubmab every 3 weeks til progression
Feb '07 - Tykerb/Xeloda
June '07 - Taken off Tykerb/Xeloda protocol as lung mets had progressed and now had brain mets as well. Treated upfront with Gamma Knife Radiosugery for brain mets and started Doxil on 6/26/07.
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Old 04-17-2007, 08:11 PM   #2
hutchibk
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Posts: 3,519
Thanks Lori. I just ordered it.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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