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Old 04-12-2007, 11:29 AM   #1
dede10
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Join Date: Oct 2005
Location: TN
Posts: 84
Is it Just me????

I am constantly in pain with something.... chronic headaches, back, (r) side pain, (l) leg pain, (l) foot going numb on one side on occasion, high bp, my heel even hurts, and has hurt for over a month! I had clots last yr, which resulted in a stay in ICU, and a new port. High cholesterol,

I am on Neurontin for possible nerve damage after Navelbine ( (l) side pain, Lisinipril for BP, Fiorecet for headaches, coumadin for clots, Ambien for sleep, ativan for everything else..... along with Zetia for chlestoral, protonics for daily heartburn, and aaarrrrrgggg! I feel like I am falling apart! 4 yrs ago, before all this started I took nothing! I was never ever sick!
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3/2003-Dx'd Stage 4 Her 2+++

"Life is not measured by the number of breaths we take, but by the moments that take our breath away."

Dum spiro spero
(Latin: while I breathe I hope)
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Old 04-12-2007, 12:19 PM   #2
Mary Jo
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Location: Sheboygan, WI
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Hi Dede,

No, I don't think you're alone in the aches and pain department. I have different aches and pains also that I never had before. Sometimes though I wonder what aches and pains we had before that we never paid attention too because we didn't really notice them. Since a cancer diagnosis I think we are looking and watching for everything HENCE are much more aware of every ache and pain.

A gentle hug I give you.

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 04-12-2007, 01:41 PM   #3
Andi
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Posts: 243
I was diagnosed with recurrence in December. I am currently on Navelbine and Herceptin. I had 'stiff" achy ankles when I took my original year of herceptin. My onc told me it would go away when I stopped taking it, which it did. Now that I am back on it again, the stiffness and aches are back and it does include my heals this time around. I also find myself questioning every little ache or pain I am feeling, especially since at my recurrence diagnosis I felt so darn good, other than a nagging dry cough. Have you ever asked if the combination of meds you are taking now could be causing some of the effects you are dealing with? I am so sorry you have to deal with all of this, you are in my prayers.
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-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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Old 04-13-2007, 06:20 AM   #4
Shell
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Location: Philadelphia
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I know what you mean - I don't have as many specific issues, just what we refer to at our house as "mom is feeling ache-y break-y" today.


Good luck w/ things,
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Shell

init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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Old 04-13-2007, 08:14 AM   #5
suzan w
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Smile

I sure do identify with what you said! Never an ache goes by without me worrying that there is something devastating going on! I do have more aches and pains than 'before'...my whole chest area has weird numb spots and strange nerve sensations...some days worse than others. The joint pain from Herceptin has subsided, but Arimidex also has some of the same side effects. Most days I feel lucky to be alive and try to enjoy the aches and pains as proof that life handed me lemons and I am drinking lemonade as fast as I can!!!
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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