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03-30-2007, 11:42 AM
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#1
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Senior Member
Join Date: Nov 2006
Location: Bakersfield, CA
Posts: 66
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Ports Moving
Has anyone ever had their port move around? I have had mine in since Dec 2004 and never had problems until recently. I have been on weekly Herceptin since Oct 2006 and added bi-weekly Taxol in Feb 2007. The last couple of weeks my nurse has had a hard time accessing my port - we had to use a longer needle one week and used two needles before we were in the second week. Yesterday she couldn't even access it at all and we had to start an IV. She said it felt like it had flipped over. She asked my oncologist if this was possible and he said yes. They had me go get an X-Ray to see the position.
I guess my question is will they have to completely remove the port and put in a new one or can they just fix the one that is already there?
Thanks for any input.
Stephanie
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03-30-2007, 12:42 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Dye study
Hi -
I have had a few problems with my original port that sound a lot like yours. The specialist in access lines did a dye study under a flouroscope to see if the end of the catheter was clogged. This was after an x-ray determined that the port was still "sunny side up."
It was determined that a myelin sheath was blocking my line - it would flush, but not draw.
Solution was to get my finicky port replaced with a newer one which is placed higher and does stick out, which the old one didn't.
Good luck!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-30-2007, 01:13 PM
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#3
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Senior Member
Join Date: Aug 2006
Location: Rowlett, TX
Posts: 138
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I've had chemo nurses tell me about others who have had ports 'flip' too. Apparently they're stitched down in a couple places (?) and if a stitch gives away, it can flip. Mine went a bit 'sideways' once, but the nurse wiggled it a little and got it 'topside up' again. Never had the happen again.
Guess it's just one of those things that can happen.
I also have the 'flush but not draw' from time to time. They've always gotten it to draw, but only after a lot of... raise the left arm, no raise the right arm, face left, try facing right, cough, etc...
The funny thing is that generally the next time after going through these contortions, it draws fine.. NO consistency here.
__________________
Janet in Rowlett Texas
Dx July 2006 IDC 1.8cm, ER-/PR- HER2+ (FISH 7), KI67 High (60%) grade 3, TOPO II neg
Aug2006: lumpectomy, SNB (4 nodes neg), Stage 1
Jan 2007: Finished 6 cycles of TCH (Taxotere, Carboplatin, Her ceptin). Then Herceptin every 3 weeks.
Feb 2007: Completed Radiation
May 2007: Stopped Herceptin due to low LVEF (49%)
July 2007: LVEF now 44% -- starting Coreg
May 2008: Heart NORMAL! Yippee.
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03-30-2007, 03:12 PM
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#4
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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I've also had port problems in the past; I'm on my third port since 2007. If a port has major problems they usually play it safe and replace it, and it sounds like that's going to probably be what they'll suggest for yours. As surgeries go, it's a fairly easy one! Good luck, keep us posted.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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03-30-2007, 03:32 PM
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#5
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Stephanie,
My port flipped over the first time the nurse tried to access it after it was inserted. They sent me back to the radiologist and luckily he was able to manipulate it externally and get it back into position.
He said this was unusual, totally not my fault, just one of those things.
Hopefully it won't happen again, so far has been okay.
Caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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03-30-2007, 04:40 PM
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#6
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Senior Member
Join Date: Nov 2006
Location: Bakersfield, CA
Posts: 66
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Thank you for the information.
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