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03-29-2007, 07:29 AM
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#1
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Senior Member
Join Date: Jan 2007
Location: Media (Wawa to be exact), PA
Posts: 104
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KUDOS to JOE!
Joe,
I have to say this.... this is the most organized effective and informative site/message board on the internet. NOt to mention user friendly as well as all of the wonderful sisters and brothers that post on it. You have made this a labor of love and used your talents to support and help everyone here. I just "joined" in january but I can not tell you how I sing the praises of the board and the people on it. You have allowed us to learn through others experience, and you know what they say... experience is the best teacher. THANK YOU
Your .signature says it all!
Proud webmaster to the internet's most informed, educated, compassionate and caring group of breast cancer survivors...
and you are the reason
__________________
DX BC 12/06
tumor .9
Lumpectomy 1/8
Mammosite radiation completed 2/10
Stage1/Grade 1
clear Margins /Nodes Neg
ER+
IHC +2 Fish +
ONCO 23
Started TCH on 3/2 for 6 rounds of TC once every three weels and a year of Herceptin every 3 weeks -
Finished everything and now on Aromasin
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03-29-2007, 07:55 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,747
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Ditto! Thank you so much for all you do!!!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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03-29-2007, 12:49 PM
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#3
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Senior Member
Join Date: Mar 2007
Location: SW Virginia
Posts: 50
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I agree. I just joined in early March, but I have already found a wealth of information, met some wonderful women and been taken under wing by one of your totally wonderful members with similar stats to mine. It's a godsend for all of us. Bless you for your labor of love!
__________________
Susan in VA
Determined to be a VICTOR not VICTIM - by the grace of God!
DX 2/8/07 at 48
1.75 cm IDC in left breast, Stage 1
Grade 3, ER-/PR-/HER 3+
Lumpectomy 3/7/07, 5/5 nodes clear, clear margins
Starting TCH on 4/9/07, every 3 weeks X 4 treatments - Completed on 6/12/2007
33 rads to began 7/2/07 and completed on 8/22/07
Herceptin every 3 weeks until April '08
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03-29-2007, 03:45 PM
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#4
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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Joe, I so agree with what has been said. I have referred several breast cancer patients to this site whether they are Her2 + or not as it is a great place to start using the internet for information and support. And they have all repeatedly thanked me for telling them about the site. Thank you so much for your efforts.
Marlys
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03-29-2007, 04:51 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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We are so lucky.....
Amen...
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-30-2007, 10:49 PM
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#6
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Senior Member
Join Date: Mar 2007
Location: Greendale, WI
just outside Milwaukee
Posts: 211
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Joe
Thank you for this amazing site. My only complaint is there is no spell check. I have got to be the world's worst speller. You have earned your place in heaven. Luv  Karen
__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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03-31-2007, 07:39 AM
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#7
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Senior Member
Join Date: Nov 2005
Posts: 943
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Joe is amazing for providing this website which is supportive and educational.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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03-31-2007, 01:08 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Thank you
Thanks Joe and Chrstine, for taking on the challenge in the first place, and for sticking with it.
AlaskaAngel
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03-31-2007, 01:21 PM
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#9
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Senior Member
Join Date: Oct 2005
Posts: 476
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Not only are the info valuable, the people supportive, the managers devoting and overall atmosphere comforting, the internet connection is always a breeze. I just got a new computer and in no time I am ready to go here again without skipping a heartbeat. By the way, I paid only $200 for a brand new desktop with 3.33 GHz, 532 MB and 120 GB, without DVD/CD-RW and Microsoft Vista.
__________________
Ann
Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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