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03-23-2007, 01:36 PM
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#1
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Senior Member
Join Date: Nov 2005
Posts: 43
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Help!
HI- I had my first zometa yesterday and I was never so sick in my life. Fever and chills, flushing- one minute I'm freezing and the next I'm really hot. Also- a terrible headache and pains everywhere. I've been taking tylenol all day and all last night and have exceeded the 8 a day limit.
What should I take now and when does it go away? I like to take benadryl to sleep but I don't think it will help the fever. God Bless, Cathy
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03-23-2007, 02:34 PM
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#2
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hi Cathy!
Call your doctor's office and ask the nurse to have him/her to prescribe something for you to get relief! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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03-23-2007, 03:51 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I agree with Maryanne. I also felt this way on Zometa. I got it 3 times (every 6 months) because I have osteopenia and was getting IV Herceptin anyway. After Herceptin was over my onc said I could continue Zometa and I said no. Oral pills. I would take it if I got bone mets but otherwise, it made me feel really sick like you (flu-like symptoms). Aleve worked well for me.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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03-23-2007, 04:19 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Cathy,
I had the same reaction with Zometa exactly one year ago. I had it late Thursday afternoon. I went to school early Friday morning and by 9:30 I had to leave because I was in such pain. This is coming from someone who only missed 4 days of teaching the year I had AC followed by Taxol. I also was back at school one week after brain surgery a year ago. I normally have to be quite sick to stay home. I ended up staying in bed Friday, Saturday, and Sunday after that first Zometa infusion.
Later, each infusion became somewhat easier and I learned to take Advil right away. Now, I don't have to take anything, I have no pain, and my body has adjusted to it. I have been told that it helps to have a longer infusion. Good luck! I think that if you continue with it you will find that your body will adjust. It also helps to take a warm bath for the pain.
Best regards,
Barbara H.
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03-23-2007, 06:55 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Hey Cathy,
I had the same reaction and it took about two days to get over it. Just like a bad case of the flu. Out of all that have done, Zometa was the hardest. Luckily, I will only take Zometa once a year for osteopenia--so I guess I can tough that out.
Hope you feel better.
________
Paxil Side Effects
Last edited by sassy; 08-22-2011 at 09:12 AM..
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03-24-2007, 12:18 PM
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#6
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Senior Member
Join Date: Nov 2005
Posts: 43
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Thanks!
Thanks so much for your help!! I feel so much better today. I could barely make it to the computer to type the question for you yesterday.
Have a great weekend! God Bless, Cathy
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03-24-2007, 01:38 PM
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#7
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Senior Member
Join Date: May 2006
Location: Mesa, Az
Posts: 219
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My first 3 was that way now much better
Cathy, that happened to me also for the first 3 doses. I took tylenol as a pre med and super hydrated myself. That afternoon and 24 hours flu like including temp spike. After that I have no problems but I do make sure that I push extra fluids the day before and couple of days afterward. I have been on it for almost 10 months now 1 time per month. Take care and good luck Darita
__________________
dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
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03-24-2007, 08:04 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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How many milligrams are given with each treatment and how often are they given? It seems that so often, people get bad flu symptoms after getting treatment with Zometa. I talked to my onc about maybe having Zometa being as I still have my port.
I thought maybe a person would be less sick if it was taken more often than once every 6 months; I was assuming the milligrams would be less if it was given more frequently. But my onc said 4 milligrams were given with each treament, no matter how often you get them. Is this correct?
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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03-25-2007, 05:01 PM
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#9
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Senior Member
Join Date: Nov 2005
Posts: 43
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I don't know how many mg. is was, Barb. I can find out next week. They said the standard for me is once a month, but since I am coming in every three weeks for herceptin, they would give it to me then. I would rather come back the next week and keep it at once a month. I still have a headache, but everything else is mostly gone, thank God. God Bless, Cathy
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