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Tykerb approval, then what?
I am going to take it off label. If any of you are going to do that also, how long? I had a talk with Dr. Salazar at Project LEAD and she was trying to talk me out of it. I know it's her job to believe in "Evidence based Science" but if my friend would have pushed for Hercepint OFF trial when she got the control arm, chances are she would still be here. I understand the point of "saving it for when you need it" but if it never comes back because it "cured" me then I WON"T need it?! I think I decided to take only 9 weeks of it. Just because the Finland trial showed to same results with Herceptin at 9 weeks. One would think the same rules apply since they are both targeted therapies. What does everyone else think???
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Michele Ulmer
dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
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