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03-06-2007, 03:17 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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I miss Lisa, Al...
and many other provocative thinkers. At one point we used to have some SURE FIRED discussions (the chats were awesome too) regarding cause of her2 bc, treatments, diet, exercise, alternative meds etc and I just haven't felt the "spark" of creativity lately (I guess that's why I haven't posted much). There are others I miss too, but Lisa and Linda/Al held a special place in my heart (I have a card in my planner that Lisa sent to me and I look at it and think of her often). Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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03-06-2007, 04:27 PM
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#2
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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It is difficult...
missing special people....Rhonda,
I have an additional question, why is it that no one is using the chat room?
When ever I enter the chat it is always empty at many different times.
I know that it is always available (as Joe stated) in an earlier post.
Why not just make a chat room date - like every Mon & Wed. evening from
7:30 or 8 Pm to 10 pm each week - and keep it open for any and all
discussions? If the memebers knew this was standard maybe many would
enter?
Just a thought...
Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-06-2007, 04:34 PM
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#3
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Chatting would be a great way to honor Lisa, Linda, and everyone else! I love the idea. Pick a time and lets go! We might just wake up some sleeping giants!  ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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03-06-2007, 08:36 PM
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#4
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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I too have entered the chat room on many different occasions and there is never anyone there to chat with. I like the idea of having the chat room...it lends itself to conversation which sometimes is nicer than just posting. Makes it more personal as well. I guess we are all so busy with reading the postings on this forum and with regular things in life that it doesn't leave much time to chat in a chat room, but I will continue to check it periodically and look forward to the opportunity to chat with some or all of you.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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03-06-2007, 09:19 PM
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#5
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Becky has posted a "Sticky" poll to try and determine what the best day and time would be for a scheduled chat.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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03-06-2007, 10:35 PM
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#6
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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I did a few chats a year+ ago. Fun. You really need to set a topic and time to encourage people to log on. It is difficult to type and read at the same time for some of us.
Keep working on it. If someone wants to make it happen it will. I think for many of us when we get NED, we tend to refocus on other aspects of life like working, etc. I do think it is helpful to connect with others at real time on some subjects.BB
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03-07-2007, 08:31 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Atlanta
Posts: 87
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Rhonda~what a thoughtful post...
Rhonda-so insightful...
I feel like the boards have been a little "heavy" & uninspired lately...
I'd love to see us all get on a positive role again. There's been some great stuff going on like,
*Mary Anne in Tx, done w/radiation!
*Catherine's Curly Hair after Chemo (& how much so many of us LOVE it!)
*Fullofbeans(Karina) & NED together & their remarkable journeys ahead
*Madubois's continued return to health
*Vanessa's grandchildren & their impending arrival!
and so many more... 
My personal contribution - I'm day 5 postop reconstruction (implant swap-out) & "The TWINS"-i call them "Itchy" & "Stingy"-are healing SO SO quickly. I sqwashed my finger in the car door the same day as my surgery, and that hurts more than my surgery site!
Not to mention, this time last year I was nursing wounds from an excisional biopsy of yet another malignant breast tumor, discovered only 8 weeks after a R Hepatectomy. I had so many bandanged incisions I felt like I had been mugged and knifed!
I have always LOVED this site b/c of the confident and compassionate, wise women & men who post here.
You have all been pivotal to my continued survival and thrival (I know, that's not really a word, but I can't think of the right one, right now!)
So, God Bless!
Take good care of yourselves & one another,
and most of all,
Keep the Faith~ |
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03-07-2007, 03:03 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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oh my sweet buddies! rhonda- XOXO
we are all still here. loving one another, right. i know i don't post every day but i sure read you at least 3-4 times a week. you are always with me.
chat room? yeah i keep loggin in and log out because it's empty.
anyway, let's talk.
love to all
MCS ( maria)
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03-07-2007, 07:37 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I'll get my butt in gear and post on the chat room. Tuesdays won and I will relook and repost and start that baby up again. Stay tuned.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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03-08-2007, 05:13 AM
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#10
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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thanks to all who are willing to get it in gear for us!!!! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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03-08-2007, 05:47 PM
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#11
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Senior Member
Join Date: Dec 2005
Location: Illinois
Posts: 327
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Was that the Lisa with inflammatory bc? Do you have a member link?
__________________
Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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03-08-2007, 05:54 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Lisa...
Love and Light. Her husband MGordon (Mel) now posts (he used to some, but not like his is now).
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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03-08-2007, 06:01 PM
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#13
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Senior Member
Join Date: Dec 2005
Location: Illinois
Posts: 327
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Can you share a post of what she used to talk about?
__________________
Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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03-09-2007, 03:53 AM
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#14
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Here is a post from Mel...
So sorry Mel, I was only trying to jog her memory as to WHO she was, not "who" she was. So sorry again.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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03-09-2007, 12:41 PM
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#15
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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Lisa's posts...
I would say the best way to get to know my beloved is to read her threads/her words - not necessarily the previous link. The previous link is woderful but deals with her last days - I think this link will take you to every post SHE made - when she remembered to sign in anyway  !
Thanks for the link Rhonda! Although it was hard re-reading that thread I really needed to do it!
http://www.her2support.org/vbulletin...searchid=59854
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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03-10-2007, 12:17 AM
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#16
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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No apology necessary...
Either link... Either thread... THAT WAS LISA! I just wanted to provide a link to Lisa via "her" words, not my memories...
NEVER worry about "stepping" on my feelings. I realize the love and care with which you reply to each and every post.
Love and Light
Mel
PS - did you edit your thread? I no longer see the link you posted!?!?!?
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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03-10-2007, 04:14 AM
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#17
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Mel...
yes, I did as your hurt feelings weren't worth keeping it up there. Curious though, did Joe pull Lisa from the member list as I no longer see her there so that I can attach?
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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03-10-2007, 08:47 AM
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#18
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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To be honest...
I don't think I ever saw Lisa on the memberlist - although see is member. I always have to find one of her posts, then I can do a find all...
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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