HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 02-26-2007, 03:41 PM   #1
Joy
Senior Member
 
Joy's Avatar
 
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
had scans today

Boy how things have changed in such a short time. I hadn't had a PET/CT in a long time. The last I did was in one of those trailers that was dank with a really ugly easy chair and heinous bad paneling and no bathroom. AND you had to have your arms 'tied' above your head for 45 minutes til your shoulders cramped. I remember the last 5 minutes seemed like years. I always kinda wondered if it wasn't tech humor behind the torture.

So now we have our own PET center in Ft. Fun. It is swanky. Comfy chair, rooms with big windows and I got to watch a DVD of "Everybody Loves Raymond" on HD TV. This is a treat to someone who has not had television for 11 years. My TV is tiny and we just watch the occasional dvd. Oh, and really good looking, funny techs who are quite smart-bonus. Then the PET/CT part was only 25 minutes, 2 warm blankies and my arms at my sides, I even dozed off-woo hoo.

The most hilarious part was my 'parting gift'. I got a gift bag (purple tissue and everything). The guy said, "Here is a drink and a snack". I got in my car and cracked up! There was a bottle of water-great and the snack was Keebler frosted animal cookies! I felt like recess would be next. There was, though, a beautiful book of quotes in there too.


Anyway, I have a regular CT with IV contrast scheduled for next Monday. I don't meet with my doc until a week from Thursday and I realized I don't even want the results. I mean, I know I have to get them, but I'm not chomping at the bit to get them the way I used to. It feels a little weird, but good, I think. The last couple of years I have lived results to results and I vowed I would not this year. Gina's story in her post kind of shored that up for me. My only anxiety now is when the phone rings, which happens A LOT. I just hate it when a doc calls and my hope is that there is no call and that results are good enough that it can all wait until the 8th.

So, of course, I'm asking you guys to think the happy thoughts that I know you do and for which I am always so grateful.


I would love to stay on navelbine. I really want to get my new hair highlighted and cut before my New Orleans trip March 28th. But I'm waiting until results. I wish I were gutsy enough to just do it and say even if the results stink I will approach this w/out chemo i.e. SIR or tykerb/herceptin (approval of tykerb would HELP) or adding avastin.

I want to stay excited about New Orleans.

My ex-husband and I still go on family vacations with our kids and we are thinking about a houseboat trip this summer -our 10 year old's request. I'd like to stay excited about that too.


My best friend of over 20 years has been in South America and when she returns she is thinking of hanging out here with us for awhile and working in Ft. Collins and I want that to be great too.


I would also like to get 'well' and work again. My family 'forbade' me after I started Taxol/Carbo last year as they wanted me to focus on health and kids. But I'm motivated to earn some money myself and I pledged money to our little private school that desperately needs it in order for me to stay focused and be positive. I have to make good on that.

And, most importantly, as so many know for yourselves, my kids need a mom. I'm not the best mom ever, but I sure try hard and I love doing it.


Oh and again, a date would be nice in the future too.


Okay, I have shared an awful lot-sorry. All I really wanted was some extra good thoughts from you, who understand all of this better than anyone. Love to you all.
__________________
with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
Joy is offline   Reply With Quote
Old 02-26-2007, 05:56 PM   #2
sassy
Senior Member
 
sassy's Avatar
 
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
Images: 4
Joy,

Keeping good thoughts going your way. And I have no doubt your kids know you ARE the BEST MOM! How could they not--you're their MOM!

Hoping all the good things come true...
________
Marijuana Bubbler

Last edited by sassy; 08-22-2011 at 09:08 AM..
sassy is offline   Reply With Quote
Old 02-26-2007, 06:06 PM   #3
MJo
Senior Member
 
MJo's Avatar
 
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
How exciting that you are going to NOrleans. I've always wanted to go there and it is definitely on my "must do" list. Women on this board are so interesting. Taking regular vacations with an ex husband and a potential houseboat trip. Sounds like a book to me.
__________________
MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
MJo is offline   Reply With Quote
Old 02-26-2007, 06:31 PM   #4
Barbara H.
Senior Member
 
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
Hi Joy,
I was happy to hear that you had a much better experience with your PET-CT scan. I hope it turns out well and that you can stay on Navelbine or a drug with few side effects. My thoughts are with you and I wish you a great trip to New Orleans.
Barbara H.
Barbara H. is offline   Reply With Quote
Old 02-26-2007, 07:58 PM   #5
rinaina
Senior Member
 
rinaina's Avatar
 
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
Images: 2
You have my prayers and only good thoughts. What do you mean you aren't the best mom. I can tell from your posts the type of person you are. You are humorous, sensitive, caring, considerate, kind and so on...if these aren't characteristics of a good mom, then I don't know what is. All this and a single mom to boot always continuing the fight against cancer. You are one strong woman and an inspiration to us all. Here's hoping for that highlighted hair before your New Orleans trip. I know there are many dates out there for you. You are too cute for the men to pass up and more importantly to good of a person for them to miss out on.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
rinaina is offline   Reply With Quote
Old 02-26-2007, 08:38 PM   #6
Andi
Senior Member
 
Join Date: Mar 2006
Location: IOWA
Posts: 243
Joy - here's thinking positive thoughts for your test results. I hope you can stay on Navelbine. I agree with rinaina - you are a good mom - it difinitely comes through in your posts, as does your sensitivity and good humor. You sound like such a strong woman and a real fighter - two very key ingredients in fighting b/c and hanging around for a very long time. You certainly keep me inspired! As always, you are in my prayers.
__________________
Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
Andi is offline   Reply With Quote
Old 02-26-2007, 08:46 PM   #7
kareneg
Senior Member
 
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
Smile

HI Joy,

Get your hair highlighted and have a great time in New Orleans! You sound so much like myself I don;t want to know any test results at all, but we both know thats not going to happen, And I enjoy the view when I go for my cat scans the techs are very pleasing to the eyes lol. Joy you have all my well wishes and prayers. Have a great trip!
__________________
Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
kareneg is offline   Reply With Quote
Old 02-26-2007, 09:35 PM   #8
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Joy - I loved reading your post (I always love reading your posts!)

You are so right to be wanting all those good things - and I will continue to send good thoughts and prayers your way. It is so hard to stay postive, but you have such a great way to find and enjoy the positives, even when you're down. You made me want to go to Ft. Collins for a PET scan - wow - goody bags AND smart, good looking nice techs!

Much love and I'll be watching for your full report!
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
chrisy is offline   Reply With Quote
Old 02-28-2007, 09:46 AM   #9
Joy
Senior Member
 
Joy's Avatar
 
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
oh...you guys...

you are all so great. Thank you so much for your thoughts and wishes. Still a little nervous these days. And very focused on the aches and pains-you know how it is. I can't separate what is real, concerning, imagined, etc. I make myself crazy.

Wow, I just looked out the window and we have quite a snowfall coming down-just about over the winter thing.

Chrisy-you come to Ft. Collins and we can have scan fun!

Seriously to all, May in Ft. Collins is usually so beautiful. The flowers are gorgeous, the sky is so blue, the vibe is happy. We have canyons and rivers and great coffee shops. So if anyone ever wanted to visit, my door is open.
__________________
with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
Joy is offline   Reply With Quote
Old 02-28-2007, 11:52 AM   #10
tricia keegan
Senior Member
 
tricia keegan's Avatar
 
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Wink Good luck Joy:)

I'll be thinking only good results for you!
Your scans sound soo luxurious though compared to mine which is a dull hospital room with usually even duller staff lol!
As for the hair..GO FOR IT AND DO IT!!
While you're feeling so good why not, and have a wonderful trip.
Think only positive thoughts and I hope you get all you dream of!
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
tricia keegan is offline   Reply With Quote
Old 02-28-2007, 11:58 AM   #11
Jeanette
Senior Member
 
Join Date: Oct 2005
Posts: 215
test results

Good luck on your test results. I go for an Ultra sound guide biopsy tomorrow, so hope things go well there.
Jeanette is offline   Reply With Quote
Old 02-28-2007, 01:20 PM   #12
Vi Schorpp
Senior Member
 
Join Date: Sep 2005
Location: OH
Posts: 385
The very best of luck to you Joy...I think it speaks volumes that you can vacation with your ex...yes the kids' priorities are taken care of that way, but it takes strong people to do that. The two of you (and your kids) will always share a history, so let family vacations be a part of those memories.

You have a very giving and caring persona about you...I wish a date for you very soon....maybe its in New Orleans you are supposed to meet, who knows?
Vi Schorpp is offline   Reply With Quote
Old 02-28-2007, 06:31 PM   #13
Vanessa
Senior Member
 
Vanessa's Avatar
 
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
Best wishes on your scans. I am sending positive vibes your way and saying lots of prayers. I had a petscan last Thursday and still had to put my arms on a pillow on my forehead. Keep up posted!
Vanessa is offline   Reply With Quote
Old 02-28-2007, 06:48 PM   #14
Sandy H
Senior Member
 
Sandy H's Avatar
 
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
You are a special Mom! Your children will appreciate you doing things with them and their Dad and I assume they are your children's Dad. Some day they will thank you for that realizing it may not be that easy to do. You sound like such a caring and fun person. Would love to meet you some time. Have a wonderful time in New Orleans. I was there in January and took the city tour which I really enjoyed and learned so much. It was hard for us to drive around in the city so many one way streets. The tour guide told us everyone gets lost because its not south, north, east or west like on the map its up river, down river this side and the other side for directions!!! Sending you a hug that all will be well with your scan results. Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
Sandy H is offline   Reply With Quote
Old 02-28-2007, 07:54 PM   #15
MGordon
Senior Member
 
MGordon's Avatar
 
Join Date: Nov 2004
Location: Colorado
Posts: 131
Scans

Gotta say it - if your scans did not reveal the biggest heart in Colorado - go back!

Love and Light
mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
MGordon is offline   Reply With Quote
Old 02-28-2007, 08:30 PM   #16
Carolyns
Senior Member
 
Join Date: Jun 2006
Location: South Florida
Posts: 477
Hi Joy,

Add me to the list of folks on you fan list and those who are thinking happy thoughts for you as requested. I hope that you have a great vacation in New Orleans with your beautiful newly highlighted hair!

Love, peace, and hope,

Carolyns
Carolyns is offline   Reply With Quote
Old 02-28-2007, 09:11 PM   #17
lindaw
Senior Member
 
Join Date: Sep 2005
Location: .
Posts: 211
Dear Joy


Wishing you all the best for your scans. fingers crossed.

love
linda
lindaw is offline   Reply With Quote
Old 03-01-2007, 03:24 PM   #18
vickie h
Senior Member
 
vickie h's Avatar
 
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
Your name says it all

Joy, I am praying your scans come back clear. You are such an inspiration to us all, always sharing such kind words and thoughts. Your children sound so wonderful and I think it is so great that you and your ex can do things together with them. This is the day that counts, the moment that stands still for us. I am looking outside at the cold breeze on the sunlit trees and sending you my heartfelt thank yous for all you have done for your sisters here at this website. Your name says it all....you are a joy to each and everyone of us. Have the most wonderful time on your vacation and hold those children so close....Good loving thoughts from California, Vickie
vickie h is offline   Reply With Quote
Old 03-01-2007, 05:47 PM   #19
lexigirl
Senior Member
 
lexigirl's Avatar
 
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
Joy,

Just seeing your sweet smiling face makes me smile! I pray that your scans look great and that you are able to have a wonderful time w/ your family.

Hugs,
Lexi
lexigirl is offline   Reply With Quote
Old 03-01-2007, 09:56 PM   #20
Soccermom
Senior Member
 
Soccermom's Avatar
 
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
Smiles and fingers crossed from me also,Joy!
Make sure you have beignets and coffee at the Cafe du Monde.in NOLA..not to be missed! The weather is quite warm down here in Dixie,but the nights can be cool, check the forecast in advance!

Hugs,Marcia
Soccermom is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 02:29 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2025, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter