HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 02-02-2007, 03:22 PM   #1
carolm
Member
 
Join Date: Jan 2007
Location: poole dorset
Posts: 8
Unhappy Am i to believe

Hello again
I am a little confused, am i to believe the outcome for early stage breast cancer her2 will have a better outcome on herceptin ,than ladies like me withspread to lung ,liver and bones. I thought it works the same way ? i am a little worried , i read the threads on how long it works for and came to the conclusion that my prognosis looks far worse. Has anyone had good results even though they have spread? i feel so well and have no symptoms (yet) . Take care carolmx
carolm is offline   Reply With Quote
Old 02-02-2007, 04:00 PM   #2
Sherryg683
Senior Member
 
Sherryg683's Avatar
 
Join Date: Feb 2006
Posts: 1,014
I asked my Oncologist if Herceptin cut down reoccurance rate by up to 50% for early stage breast cancer, did it not do the same for me (stage IV, 2 lung mets). He said that no, it was different. Sorry to say, for us the horse has gotten out of the barn, so to say. But that is not to say that it doesn't work and your mets can't be gotten under control or even sent into remission. I have been in remission for 10 months now with my lung mets, all my scans since April have been clean. I get scans every 3 months and am due for one this month. Once the cancer has left the site of orgin, you are always at risk of reoccurance. My Oncologist told me the goal was to keep it away as long as possible, if it comes back, attack it again. He said that there are always new drugs being found every day that they are working on and the goal is to keep it away till they find that one that might one day keep it away for good. Don't lose hope, it's hard..I know. But every case is individual, we are all different and what doesn't work for someone else, could be your magic bullet..sherryg683
__________________
Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
Sherryg683 is offline   Reply With Quote
Old 02-03-2007, 11:49 AM   #3
carolm
Member
 
Join Date: Jan 2007
Location: poole dorset
Posts: 8
Smile Thank you Sherry

Thank you for replying ,Its very hard to put your trust in doctors sometimes , they never have the time to explain things . I have had more useful imformation on this sight. I must try to be more positive ,the Herceptin is working for me and if things start to progress whilst im on it , my oncologist will add some chemo i suppose. Any way take care best wishes to you carolm x
carolm is offline   Reply With Quote
Old 02-04-2007, 01:10 PM   #4
Sheila
Senior Member
 
Sheila's Avatar
 
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Carol
There are many of us on this board that are receiving Herceptin as stage IV, and have a great quality of life...everyone is different, some things work for some of us and not for others. If you are symtomless, is sounds as though your mets were caught early, and with chemo and Herceptin, you will have a very positive outcome. Steph on this board had battled liver, and brain mets and is still doing well.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
Sheila is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 03:05 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter