 |
02-02-2007, 01:32 PM
|
#1
|
|
Junior Member
Join Date: Jan 2007
Posts: 2
|
My first post
This is my first post. I've been reading all the posts for two years and finally decided to register. I want to thank everyone for all the information they have shared.
|
|
|
|
02-02-2007, 01:36 PM
|
#2
|
|
Senior Member
Join Date: Aug 2006
Location: So California
Posts: 223
|
Welcome
Laura:
I'm glad you got up the courage to post. It was hard for me as well. I lurked for a few months and then decided to post. It isn't as hard as it first seems. Welcome, formally. Isn't this site just awesome!!
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
|
|
|
|
|
02-02-2007, 02:45 PM
|
#3
|
|
Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
|
Hi Laura,
Laura is my given name also, but I go by my nickname, Lolly. Welcome to the site. We are a diverse bunch, but have the one thing in common which serves to unite us. Together we are so much stronger!
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
|
|
|
|
|
02-02-2007, 03:14 PM
|
#4
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
So glad you posted, Laura!
I remember being afraid I would say something "wrong". Oh my, not to worry. People are here because they've been where we are.
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
|
|
02-02-2007, 03:30 PM
|
#5
|
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
Welcome Laura! I'm happy ypu posted. This site has been such a great gift. The latest information re: her2 is here.
Hugs,
Lexi
|
|
|
|
|
02-02-2007, 09:11 PM
|
#6
|
|
Senior Member
Join Date: Dec 2006
Posts: 136
|
Welcome Laura -
I have been around the site for over a year but just started posting myself! This is by far the greatest site I visit. I feel a bond to everyone on the site just be reading their posts---you probably do as well!
|
|
|
|
|
02-02-2007, 10:32 PM
|
#7
|
|
Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
|
Hi Laura and Debra, I spent a few months just looking (it's kind of like shopping for clothes). Then I couldn't keep my mouth shut 600x. I think researching and blabbing helps me not to go too crazy. In real life I am a very quiet person, so that may be why I need to post so much. Do with the site what it takes to make you feel better again. As we all know, C can make you feel pretty crappy about things
So welcome! BB
|
|
|
|
|
02-02-2007, 11:19 PM
|
#8
|
|
Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
|
Glad to have you posting Laura. This site has been a constant source of support in information for me.
________
Depakote Lawsuits
Last edited by sassy; 08-22-2011 at 09:04 AM..
|
|
|
|
|
02-02-2007, 11:25 PM
|
#9
|
|
Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
|
Welcome Laurad and Debra. So happy you decided to join in by posting. Now that you have done it once, it will come easy from now on. Please keep participating because that is how we all learn from each other as well as support each other. For the most part, I have found this to be a feel good place to come. The knowledge I have gained has been incredible and the members are so special and really there for you. I am only a member since last spring but feel a connection to everyone because of their kindnesses and help. I am sure you understand what I mean.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
|
|
|
|
|
02-03-2007, 12:31 AM
|
#10
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Laurad, So glad you decided dive on it. That's how its done. It is hard posting the first time...but it gets real easy after that. 
I am so glad you and Debra joined us. There is no better place on the web for her2 then this board. Plus you can't find a better group of women to help support you and answer all your questions. I was beyond lost when first DX.
There is always someone here in *every* area you can imagine to answer you questions....its amazing. From just general support, to a very technical question. Looking forward to hearing more from you. Don't be shy now.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
|
02-03-2007, 07:02 AM
|
#11
|
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
Welcome to both Laurad and Debra. You'll find this is an amazing site. The women here are so supportive and have a wealth of knowledge. Whenever you have a question or just feel like venting, this is the place to come. Just sorry that you both had to find this site.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 09:56 AM.
|
Linear Mode
