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Old 01-25-2007, 07:16 PM   #1
Joy
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Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
update and question

Hi all, I got test results today and all in all it is okay. It sounds like things are stable (yes, I know that is good). No new liver mets, possible slight increase in a liver tumor, but the doc said that the CT prodedure was lacking a phase that would have given a better picture. Bone scan may show a little bone progression, but bone scans aren't terribly conclusive. She also mentioned a small lung spot which my sister said (she keeps the reports to keep me from reading them all the time) that sometimes that spot is there and sometimes it is not. Really my lungs haven't changed in 7 years so who knows really what is going on. Nodes in the chest are good.

We are going to do a PET/CT in 6 weeks. In the meantime I have asked that markers are not drawn as I just can't ride the marker rollercoaster anymore. She was cool with that and I told her if she really wanted them to draw them and I will just have to resist requesting the results. I guess it is my new year resolution.

So for now I stay on the navelbine, which is so easy for me. I mentioned avastin and gave her the study from San Antonio of that with herceptin. And we also discussed some radiologic options for the liver mets.

Which leads me to my question. Thanks to "fullofbeans" I got a lot of information from a site she recommended. I'll have to look up the link again, but it really helped me a lot. One procedure that I'd not heard of that seems to have some really great results is called Laser Interstitial Thermotherapy (LITT). I'm not sure, based on, my research if it is being done much in the US or not. Does anyone know?

Thank you again for all of your support. I'm trying to look at this as positive. I just don't think it is possible to become NED after you move into the heavily pre-treated category, huh?

p.s. WAY TO GO CHRISTINE!!!
__________________
with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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