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Old 01-22-2007, 04:21 PM   #1
skeetur
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Re-excision Tomorrow

Finally, my re-excision is tomorrow. Been waiting 3 weeks for this. Seems like the longest 3 weeks of my life. I am so ready to get this show on the road.

Had first lumpectomy on 12/27. Margins were not clear of DCIS. Pathology found 2 foci of IDC with the largest being .3 cm (3 mm).

My sister (dx w/ ILC stage IIB last January) saw her oncologist today and told him about me and he gave his opinion on how he would treat me. Ovarian supression and an AI instead of tamoxifen due to a maternal grandmother who had both uterine cancer (age 50ish) and later breast cancer. He mentioned a P53 gene (think that is what it is called) that links ovarian cancer and breast cancer but there is no way to test for it yet. So, got some info before I go see my oncologist. Her onc said he would gladly consult with mine. LOL.

Wish me luck!

Heres to clear margins...
Skeetur

Last edited by skeetur; 01-22-2007 at 05:11 PM.. Reason: Correction to grandmother's type of cancer
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Old 01-22-2007, 04:51 PM   #2
SusanV
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Skeetur,


best of luck with everything tomorrow. We have something in common you & I. My maternal grandmother had breast cancer in her thirties and a new primary sometime later that they documented began as ovarian. I will be anxious to hear what your onc says about this info. My onc is against me having my ovaries out. I told him I am leaning that way ( because of my grandmother), but he & I just disagree about the topic. I am going to wait awhile... finish radiation, keep going for herceptin every three weeks and make a final decision down the road.

Take Care
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Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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Old 01-22-2007, 05:13 PM   #3
skeetur
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I just corrected my post. My maternal grandmother had uterine cancer not ovarian. My mind was thinking about the ovarian suppression and got on the ovary track. The uterine cancer would be the reason not to take tamoxifen.

My paternal grandmother had uterine cancer too but hers didn't surface til age 95 so I've heard that she really doesn't count when looking at genetic factors.

Good luck to you, Susan!

Skeetur
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Old 01-22-2007, 09:04 PM   #4
rinaina
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Good luck to both of you.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 01-24-2007, 12:45 AM   #5
Chelee
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The waiting is ALWAYS the hardest part. Now you can get this all behind you. Sending good wishes and many happy thoughts your way.

I will have you in my thoughts and prayers.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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