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01-11-2007, 04:43 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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I Have Missed You All Soooo Much
Hi to all. Happy New Year and ppeace and well being to all of you.
I have been out of touch here and found a lot of you who " I know" through here. Rhonda, Stephanie, Sheila, Irene, Sandy touscled, and so on and on
I had a prophilactic mastectomy at the beginning of december and with the holidays I have not checked in. Hope to do more frequent now.
I also received my last treatment of herceptin last week and I'm so scared of being alone without my security blankie of herceptin. I was wondering how the other ladies that are off the one year plan are now doing. I'll take a look at the posts.
this mastectomy feels different that my first. there's a little tendon under the arm which is bothering me but docs said to massage, so I'm doing that. have anyone of you had this? but you know the nodes were clean so forget the rest, right?
I honestly have missed you.
XOXO
MCS ( maria)
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01-11-2007, 06:25 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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GREAT to see you Maria...
and glad the mastectomy went well. I've been off since 8/06 and am doing fine as you will also. I hope the holidays were well for you and the new year will be GREAT for all of us. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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01-11-2007, 06:26 PM
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#3
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Maria
So glad you are back on the board....may you have a speedy recovery and a very healthy New Year....we missed you!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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01-11-2007, 08:21 PM
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#4
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Finished in November. Nails and nose still crappy. Mentally I'm OK with being off. Keeping a watch out for the next new thing. BB
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01-12-2007, 12:07 AM
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#5
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Maria,
Glad to see you're doing well. When I had my bilateral mastectomy (MRM on right side and simple on left) I had tightness in the tendon under the arm -- still do as a matter of fact. Your doctor is right. Massage does help.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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01-12-2007, 06:17 AM
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#6
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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similarities...
hi Maria - I had my last Herceptin in Nov 06. Had first mastectomy to left side 6/05 and 2nd to right on 2/06. I had that little tendon that was strange - kind of loose if I had to describe it. It did just go away. The 2nd mastectomy was different. For me it was more painful in recovery-nerve pain mostly. But not bad really. I am healed up fine now. Your right though, loosing the herceptin is like loosing a security blanket and emotionally has been one of the hardest things for me to take. I just feel like there is more they can do. I did more by talking to the psychosocial therapist at the breast center. He has been really good for me. Hope this is a great year for you! kim
__________________
Kim
Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes
BRCA 2 positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara
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01-12-2007, 10:31 AM
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#7
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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I finished in July and more than being concerned about not taking any drugs except Arimidex I most sorely miss my visits with the oncology nirses. I make it a point to see them every time I am there for an appt with my oncologists. That feels as good as getting a drug- maybe better.
I hope things go well for you.
Marlys
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01-12-2007, 10:12 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 639
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Maria,
Welcome back! We missed you too...now don't be a stranger! The tendon thing seems to be common and will likely clear up on its own. Good luck girlfriend!
Love Kim from CT
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01-13-2007, 03:19 AM
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#9
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Hi Maria
Glad your surgery went well.
I also finished herceptin Nov '06 and understand how you feel.
I'm doing fine so far but worry about any little ache or pain now and just hope in time it gets easier.
The biggest problem I have is knowing all these treatments leave us with little side effects and aches but not running to the Dr every time thinking I have a recurrance.
Good luck and a healthy new year to us all
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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01-13-2007, 11:38 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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Thank you ladies. some of you have new pictures and all look absolutely fantastic.
I'll try to get one of me up there.
LOTS OF LOVE TO ALL
MCS (maria)
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