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Old 01-11-2007, 06:28 AM   #1
Esther
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I'm still here!!

Thanks for thinking about me guys! It's been a busy time for me and I'm emerging from some new challenges.

I started an oral chemo como in early Dec. because my onc thought that I might be having some liver progression. After just one cycle, I started having pain in a bone mets spot on my left hip, and started radiation on it the week before Christmas, yuck! I had radiation the week of Christmas as well, but stopped treatments after 6 sessions, because it made me feel too sick and nauseated.

The pain is gone now, so we'll see from here.

A follow-up MRI on Jan 9 showed everything stable with the lesion in my cerebellum, so we will continue to just monitor it's progress.

We're going to Mammoth this week-end to try out my new skis, I got some shorter, easier to manuever skis, that will also slow me down a bit, for those days when I feel a need to be more cautious.

We leave for Steamboat, CO on the 27th of Jan, for a 10 day ski trip. Looking forward to it, as the snow reports have been fabulous! I will celebrate my 3 rd anniversary of living with mets, again at the top of a mountain. For me it's a triumph, since in Jan 2004, I was told that I probably wouldn't make it ti Christmas that year due to the severity of my liver mets.

So far I've celebrated: 1st anniversary, Aspen CO, 2nd Telluride, CO, 3rd Steamboat CO, 2008 will be Whistler in Canada, so you can see I'm planning to be doing well for a long time to come!

So I continue to deal with my mets issues one by one, and try to enjoy life as much as I can.

I'm hoping that 2007 is the beginning of a great year for all of us.
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Old 01-11-2007, 06:32 AM   #2
HavahJ
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Hi Esther!! I haven't been here in months - too busy taking care of the damn thing! I hope your vacations are great. I got back from Chile last month. I went to see my son. It was the first time I had been on a plane for twenty years. Boy, the food has sure gotten bad. They use to give you machadamia nuts! I'll communicate again sooner than last time I hope. I'm trying to get tykerb - see the oncologist today. Take care Jan
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Old 01-11-2007, 06:42 AM   #3
tousled1
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Esther,

Enjoy Stamboat, CO. I admire your positive can-do attitude. You are centainly an inspiration to many women here. Enjoy your trip and keep in touch.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 01-11-2007, 08:46 AM   #4
Joy
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sooo good to hear from you

Esther, thank you for taking time to check in. So sorry you had recent struggles, but you sure sound great. You are inspiring.

And man do we have snow here in Colorado so skiing should be great-stay warm and have fun!

p.s. what oral drugs are you on?
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with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 01-11-2007, 09:38 AM   #5
rinaina
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I love your can do attitude and your positive outlook which as you know can make all the difference in the world. Have a great time in Colorado on your 3rd anniversay since mets and keep planning those anniversary ski trips...I have a strong feeling you will be around for a very very very long time so keep those skis waxed up.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 01-11-2007, 11:31 AM   #6
Sandy H
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Esther its good to hear from you and that life goes on the best we can push ourselves! It is a push most of the time but so worth it in the end. I am here in Florida for two months celebrating almost 6 years of battling this disease, both hubby and myself turning 60 end of the month. We are loving it,oh I mean here in Florida and not turning 60, and prefer warm weather. We are getting ready to walk on the beach to look for some shells. Keep up the good work. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 01-11-2007, 01:03 PM   #7
TriciaK
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So good to hear from you, Esther! You are one gal that knows about slippery slopes, in more ways than one! But you certainly make the most of them! Hope you have a wonderful time. And, Sandy, turning 60 is something to love too! You certainly don't look it! Hugs, Tricia
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Old 01-11-2007, 02:32 PM   #8
Andi
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Esther, you are such an inspiration! Enjoy your ski trip and congratulations on another anniversary.
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Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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Old 01-11-2007, 10:56 PM   #9
chrisy
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Esther,thanks for checking in. We worry about you and miss you when you're "gone". Or maybe we're hanging on to every word so we can live vicariously through your adventures.

Sorry you have been hitting some "moguls" but sounds like you are tackling them with your usual energy.

Enjoy your mountain top celebration!

Much love and good wishes for a good 2007, for us all.
Chris
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 01-12-2007, 08:35 AM   #10
Colleen007
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I'm glad to hear that things are now stable for you, and hope that they continue to be so that you can enjoy this year's ski trip as well as your 2008 trip - I went to Whistler for my honeymoon 10 years ago. A wonderful place. We have not seen much in the way of snow here in the Boston area yet this winter, so I am a bit envious of you!
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Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old)
Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted
Mets to liver, spine & femurs (thus being stage IV right from the get-go)
ER-, PR-, HER2+
Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol.
Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans).
Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks)
Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that.
June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007.
Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.
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Old 01-12-2007, 12:34 PM   #11
sarah
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Esther,
good to hear from you. Love your positive attitude. Have a fabulous trip. You're very inspiring.
stay strong and get healthy
sarah
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Old 01-12-2007, 01:41 PM   #12
IRENE FROM TAMPA
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Thumbs up You Go Girl

ESTHER - You keep those anniversaries coming and enjoying every minute.

Your attitude is great and your love for life will keep you seeing many more anniversaries.

Have fun my friend
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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Old 01-17-2007, 02:53 PM   #13
Esther
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We just returned from a trip to Mammoth for skiing. I have new snow skiis and boots I was trying out.

Since I still have the stable 12mm lesion in my cerebellum, skiing is supposed to be difficult due to the balance being controlled by the cerebellum. Balance hasn't been a problem with normal walking, so I was hoping it still would not be an issue on the slopes.

Well, I noticed a slight balance change, and adjusted to it, so for the most part, it was not an issue.

Skiing with a lesion in your cerebellum is not supposed to be possible, ha!! Ladies let's keep showing the world what we can do in spite of our stage 4 diagnosis!!!
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Old 01-22-2007, 10:45 PM   #14
sherri
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You are superwoman. There is no doubt about it. Keep on skiing and enjoy it.

Big hug to you,
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Old 01-23-2007, 06:10 AM   #15
skeetur
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Happy Anniversary! May you celebrate all your anniversaries on mountain tops... your 5th, your 10th, your 25th, etc.

Skeetur
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Old 01-23-2007, 11:08 AM   #16
R.B.
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You have an awsome attitude.

Those bumps might be easier, but the newer skis are so much more stable I doubt you will go much slower. It's something to do with those steep bits and gravity.

Have a wonderful time.

RB
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Old 01-23-2007, 10:10 PM   #17
Bev
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Wow. Have fun! Bev
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Old 01-29-2007, 11:27 AM   #18
Vanessa
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Hi Esther, I am glad to hear that you are doing well and enjoying life! I hope everything continues to go well for you. Have fun on your next adventure!!!
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