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Old 12-21-2006, 11:06 AM   #1
Barbara H.
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Smile Brain surgery report!!!!

Hi,
I just received a report from my oncologist that the 3 1/2 cm tissue they removed contained no cancer tumor cells. It continues to be radiation necrosis. This is such a gift to me and music to my ears. Of course I am high on Decadron and on cloud 9 as well!!!
Best wishes,
Barbara H.
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Old 12-21-2006, 11:18 AM   #2
tousled1
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Barbara,

So glad to hear the good news. This is certainly the best present that you could get this time of year. Happy Holidays!
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-21-2006, 12:52 PM   #3
tricia keegan
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Red face

Barbara what wonderful news for you!

Congratulations and have a happy Christmas.
Go celebrate
Tricia
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 12-21-2006, 01:05 PM   #4
Mary Anne in TX
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Cheers, Barbara! What a wonderful Christmas gift for you! Congratulations!
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 12-21-2006, 01:16 PM   #5
Becky
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Thank God!! I am so happy for you. Have a very Merry Christmas. Sending a huge hug your way. A good result for one of us is a good result for all of us.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 12-21-2006, 02:39 PM   #6
Heart Sutra
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YAY!

...And high to boot!

This is such great news. We are very happy for you, good time of the year for good news Barbara, thank you...

...for being here.
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---Kevin and Sue---

Dx'd 10/06 IDC grade III/III
Er- pr- HER2 3+
MRM right breast 12/5/06
nodes negative
same day reconstruction started
(implants)
Stage II (2.2 cm tumor)
fairly extensive DCIS
Ct and Bone scans clean
Port placement 12/26/06
AC (4 cycles DD)to begin 1/2/07
Taxol/Taxotere (4 cycles DD)
Herceptin for one year

"There is no distinction between the one who gives, the one who receives, and the gift itself."- Hahn
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Old 12-21-2006, 03:10 PM   #7
StephN
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Smile Y-e-s_s_s_s_s_s!

Dear Barbara -
Music to my ears too. That is such a great relief.
We got our wishes - no cancer in our brains. Now we just need to find a way for the necrosis to quit bedeviling us.

I hope your docs never think they have to go into your head again.
May the real meaning of Christmas be found in your good news.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 12-21-2006, 03:17 PM   #8
Emmay
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Smile

Congratulations Barbara and StephN!!! What wonderful news for the holidays. I'm sorry you had to go through the surgery, but what a relief to learn it was only necrosis. May your healing be swift, and your new year happy.
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Old 12-21-2006, 04:45 PM   #9
Jean
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Barbara,

I am so happy for you! Always so wonderful to hear "GOOD NEWS"
Wishing you many blessing this Christmas.

Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 12-22-2006, 09:06 AM   #10
MJo
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Keep the good news coming.... have a wonderful holiday and a happy, healthy and prosperous New Yearl. MJO
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 12-22-2006, 09:16 AM   #11
Johanna Johannsdottir
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Hi Barabara,

Excellent!

Merry Christmas,

Jóhanna
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Old 12-24-2006, 07:39 AM   #12
pattyz
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Wonderful to hear this news, Barbara! I'm so very happy for you... a great Christmas gift )

with love,
pattyz xoxoxox
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Old 12-24-2006, 03:04 PM   #13
sherri
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Wonderful news for Xmas. I wish you a fast recovery. Dance with NED.

Much love,
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Old 12-25-2006, 08:38 AM   #14
MJo
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Necrosis! Never has such a nasty-sounding word been so beautiful. We cancer survivors deserve a certificate in medical terminology. Have a happy, prosperous and healthy New Year.
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 12-25-2006, 03:56 PM   #15
lindaw
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Dear Barbara

Wonderful Cristmas news.

Love
lindaW
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