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12-09-2006, 02:10 PM
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#1
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Please send prayer's and good wishes to Carol H
Hi Everyone
Carol just found out two weeks ago her bone cancer has spread to her brain.
She arrived in Ireland two days ago to settle in her new home and begin a new life but wanted her young children close to her husbands family here should her condition deteriorate.
She called earlier to ask me to update you all and to tell me she is being admitted to hospital tomorrow for immediate treatment as her condition worsens each day.
She'll know Monday if the tumour is operable but the swelling on her brain is becoming so severe they cannot delay so will begin whole brain radiation and chemo injected directly into her brain also.
She has had quite a lot of pain and her bone mets seem worse too so I thought if we send her good wishes and prayer's here I'll print them out and bring them to the hospital when I visit her as I'm sure if she knows her friends here are thinking of her it'll give her strength and hope to fight this with all she has.
I hav'nt known Carol very long and met her through this site but she has really impressed me with her courage and bravery and what must be a terrifying time for her.
Please help by wishing her well and together maybe our prayer's will be heard and Carol will get through this.
Thank you to everyone in advance.
Tricia
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12-09-2006, 02:49 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Carol,
I have been following your posts and you are one strong woman. Please know that our thoughts are with you. I wish you and your family all the best.
Barbara H.
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12-09-2006, 02:54 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Tricia...
DONE!!!! Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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12-09-2006, 02:55 PM
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#4
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Senior Member
Join Date: Sep 2006
Location: Savannah, Georgia
Posts: 301
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Dear Carol,
My prayers are with you during this difficult and scary time. May you find strength in God and your family and friends- We are all thinking of you and hoping you are feeling better soon.
These are some verses that I read off of a card that a very dear friend gave me. I carry it wherever I go and they always give me peace when things get difficult.
Isaiah 46:4 "I will sustain you and I will rescue you"
Isaiah 41:10 "I will strengthen you and help you; I will uphold you with my righteous right hand"
Joshua 1:5 "I will never leave you or forsake you"
Love, Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."
-Eleanor Roosevelt
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12-09-2006, 04:06 PM
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#5
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Carol will be in my thoughts and prayers during this difficult. I hope that her surgery goes well.
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12-09-2006, 05:50 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Carol,
I'm happy that you finally made the move to Ireland. I lived there for three years and it is a beautiful place. I'm so sorry to hear that your cancer has spread. Breast cancer is a dreadful disease! From your postings I can see that you are a very strong and determined woman. Right now you have the biggest fight of your life ahead of you and I'm confident that you will be a winner! Hang tough! I'll keep you in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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12-09-2006, 06:51 PM
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#7
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Senior Member
Join Date: Sep 2005
Posts: 556
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Dear Carol, I wish you all the best and a fast recovery.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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12-09-2006, 07:37 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear Carol
Hang in there. We are all rooting for you here.
Big hugs from the United States
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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12-09-2006, 07:40 PM
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#9
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Special St. Patrick's Prayer
Dear Carol -
Since you are now settling in Ireland, I thought this might be an appropriate and powerful prayer for you at this time. An aquaintence sent it to me when I was at a low point with aggressive mets. I posted it on this site one time maybe 3 years ago or more.
ST. PATRICK'S BREASTPLATE
I gird myself today with
the power of God.
God's strength to comfort me,
God's might to uphold me,
God's wisdom to guide me,
God's eye to look before me,
God's ear to hear me,
God's word to speak for me,
God's hand to lead me,
God's way to lie before me,
God's shield to protect me ...
May these words be a mantra for you, as they were for me, as you face the unknown. And I will pray for you to be blessed in your battle as I have been.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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12-09-2006, 08:54 PM
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#10
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Carol, more thoughts and prayers your way. Keep fighting for all of us. Thanks. BB
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12-09-2006, 08:54 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Carol,
Keeping you in my thoughts and prayers--be strong and know that we are here for you.
________
SexEnigma
Last edited by sassy; 08-22-2011 at 08:58 AM..
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12-10-2006, 01:54 PM
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#12
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Carol, I am so sorry to hear all you are dealing with and want you to know that I am sending prayers and thoughts your way. Please remain strong and keep up the fight and good attitude...I know this is difficult but it makes such a difference. We are all rooting for you.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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12-10-2006, 03:46 PM
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#13
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Dear Tricia, Please relay to Carol my heartfelt thoughts and many prayers for her and her family,
Warmly,Marcia
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12-10-2006, 04:28 PM
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#14
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Thank you Ladies
I know Carol will gain strength from the support of you all who understand what she's going through.
I hope to visit this week if she's well enough and pass on all your good wishes.
You ladies are great,on Carol's behalf thank you,it means a lot.
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-10-2006, 04:36 PM
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#15
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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I wish the best for Carol and pary that she will be fine.
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12-10-2006, 04:56 PM
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#16
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Senior Member
Join Date: Mar 2006
Posts: 306
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well.........this is just bad. It is a blessing that you have become so close to Carol, Tricia. And am so glad she's arrived with her family to be surrounded by their extended family, now.
I will hope for some excellent highest quality care for Carol, with all having very good 'bedside' manners, too.
Sending much hopeful thought and prayers,
pattyz
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12-10-2006, 05:52 PM
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#17
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Carol
May the road rise up to meet you and send you on a path to healing from this latest setback...you are in my prayers for a quick recovery so you can enjoy the beauty of Ireland with your family
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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12-11-2006, 12:46 PM
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#18
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Carol,
Saying a special healing prayer for you. God Bless.
Jean
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12-11-2006, 02:13 PM
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#19
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Blessings on you. All the very best to you, Carol. MJO
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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12-11-2006, 06:00 PM
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#20
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Senior Member
Join Date: Nov 2006
Location: West Virginia
Posts: 105
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We never know what's written in the Book of Life for us, what will be our destiny, how much we are to withstand. This women on this site are proof that oncologists are oftentimes wrong, no one has a crystal ball to predict the future, and the word "cancer" does not have the same connotations it used to when I heard adults whisper it when I was a child. Treatments are by far better and you are a strong woman, Carol...plus, it doesn't hurt that you have many strong women here and family around you to pick up your prayers at a time when you're not able too 
Sent with a prayer,
Steph |
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