HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 11-26-2006, 02:04 PM   #1
sally
Senior Member
 
Join Date: Oct 2005
Location: Saratoga Springs New York
Posts: 136
cancer is back

My doctor told me that I have active cancer but they don't know where. He is saying this based on tumor marker tests. My blood work has been normal for over 2 years. Is it reasonable to say that I have active cancer solely based on the blood work? Sally
sally is offline   Reply With Quote
Old 11-26-2006, 03:49 PM   #2
lisahammo
Senior Member
 
Join Date: Jan 2006
Location: Victoria, Australia
Posts: 95
Hi Sally

I would hope that he has ordered some further tests for you, such as a CT scan, bone scan or MRI, to find out what is going on.
__________________
Take care and good luck

Love Lisa



8/03 Age 39 DX 2.5 cm tumor
Invasive Ductal - Grade 3
Stage 2A
er+ Her2neu
No nodal involvement
Lumpectomy, 4 A/C - Radiation
Tamoxifen
7/04 Mets to liver - Her2+
Stop Tamoxifen
Zoladex monthly
Herceptin/Taxol 6 months
Continue Herceptin
2/06 Active again Taxol/Herceptin/Carbo - 6 months
Still active, Heart Problems - NO Herceptin
10/06 Navelbine
4/07 Liver tumours increasing
4/07 Gemzar/Herceptin
lisahammo is offline   Reply With Quote
Old 11-26-2006, 04:09 PM   #3
sally
Senior Member
 
Join Date: Oct 2005
Location: Saratoga Springs New York
Posts: 136
Hi Lisa, Yes I had a PET scan about 6 weeks ago that came out great. I just had a liver MRI that also looked good. I am having a brain MRI on Tuesday. I have PET scans every 4-6 months. Are CT scans better? Sally
sally is offline   Reply With Quote
Old 11-26-2006, 05:09 PM   #4
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Sally,

My understanding is that the PET/CT scans are better than a CAT scan. How high have your markers gone up? Sometimes just an infection will make you have a high reading. Have you had the Serum HER2 test? It seems to be a more reliable blood test than the tumor marker tests.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 11-26-2006, 05:14 PM   #5
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
If your tumor markers have gone up, they usually retest to see if they continue to increase. You did not say how elevated yours were, if its' only a little it may be nothing.

Elevated markers would indicate you should get follow up testing/scans as you are doing.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
chrisy is offline   Reply With Quote
Old 11-26-2006, 05:25 PM   #6
sally
Senior Member
 
Join Date: Oct 2005
Location: Saratoga Springs New York
Posts: 136
I didn't ask how high they went up. I know they went up at least the last two times it was checked. Which is every three weeks. The last time it was checked it went up more than the previous time. Sally
sally is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 01:31 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2026, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter