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Old 11-20-2006, 03:39 AM   #1
Johanna Johannsdottir
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stage IV and bcoming a doctor

Hello my friends,

Long time since I posted but I read the site regularly. Wanted to share with you a story of my friend. DX 8 years ago at the age of 40 and 31/2 year in remission. She developed bone mets and has been on Femara. Last summer she started Xeloda and Navelbine due to more mets in bones. (she is not Her+)
When diagnoised stage IV she asked herself: What do I really want to do. So she started her doctorate in Iceland and Scotland and tomorrow she will defend her essay in the University of Iceland "The development of children's ideas about the body."
Amazing women everywhere.

best regards

Jóhanna
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Old 11-20-2006, 10:36 AM   #2
Sheila
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Location: Morris, IL
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Johanna

Thank You for sharing.....she is an inspiration to all of us that the sky is the limit.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 11-20-2006, 12:54 PM   #3
Vanessa
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I love to hear stories like that! I agree, she is an inspiration!
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Old 11-20-2006, 05:22 PM   #4
doh2pa
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A wonderful and hopeful story! Thanks so much for posting this.

Donna
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Old 11-21-2006, 05:08 AM   #5
jhandley
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Smile Doctor too down under

Hi
I was doing my PhD when dx the first time (2001); took a year off for treatment and then since I was still alive wrote up as a remote student in my home state. As a single mum of a 4 year old with severe and frequent asthma it was difficult but I managed by "taking one day at a time". When my thesis was examined it rated in the top 20% which was pleasing and I also received a letter from one of my examiners whose wife had late stage BC who was impressed by my efforts.

I also competed in Australian nationals championships for slalom canoeing whilst on chemo (taxotere) and due to my weight loss (10 kg after 8 months chemo) was only 5 sec off the Australian team and won 7 medals in various categories.
I was also able to compete in Australian Masters Games and win 3 gold medals this time beating some previous Australian champions who did not have my excellent training regime.
Cheers
Jackie
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Old 11-21-2006, 10:08 AM   #6
TriciaK
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What inspiring stories, Johanna and Jackie! It reminded me that I too got my doctorate in psychology after my first round of cancer. My husband always said the first cancer slowed me down just long enough to go for the doctorate, and the second mets slowed me down enough to write a book on marriage with him. I did finally retire from active practice, but I am still writing and doing all kinds of artistic things after my third mets in 2004. I think it is all part of the healing process and has been a blessing to me. I am so impressed by all the women on this website who are active in so many ways, physically, mentally and spiritually. I am proud to know you all! Hugs, Tricia
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