 |
09-13-2006, 09:58 PM
|
#1
|
|
Senior Member
Join Date: Feb 2006
Posts: 1,014
|
My wonderful experience today
I had a brain MRI done on Monday because of all the headaches I've been having. I called in today to get the results and spoke with the nurse. She told me she was going to pull my chart and call me RIGHT back with the results. Needless to say 3-1/2 hours later (and I had left several messages in that time), I had still not heard from her. I was going absolutely crazy. I figured there was a reason she hadn't called me back... bad news. It was almost time for the office to close... So I got back on the phone and called the receptionist and told her I was going insane with worry and to put that nurse on the phone. She came on the phone and cheerfully said "Oh, sorry..your results were normal". Duhhhh...don't they realize how much we worry about these things. And although I didn't expect her to call me back within 30 minutes...letting someone wait over that long is just not right....sherryg683
|
|
|
|
09-13-2006, 10:35 PM
|
#2
|
|
Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
|
Dear Sherry
I agree with you . It is not fair to have to wait that long. I always thought they would but i don't think medicasl paople sometimes realize what it is like waiting for these results and what anguish you go through going over all the possibiliites. I am so glad its ok.
love
Lindaw
|
|
|
|
|
09-14-2006, 04:52 AM
|
#3
|
|
Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
|
Sherry-
I totally agree with you, but am so glad all is OK...
Shell
|
|
|
|
|
09-14-2006, 05:35 AM
|
#4
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
Sherry
I can understand your frustration...I guess I am lucky, when I get a mammography, they don't let me leave until I have a reading, when I get my scans, Mri's etc, I know within 24 hours....
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
09-14-2006, 11:42 AM
|
#5
|
|
Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
|
Sherry,
Yes, I've had that happen, too...I guess they only get "charged up" when there's BAD news. They don't always understand that we're waiting by the phone with our blood pressure spiking!
Delighted to hear, however, that in the end the important experience (the results of the scan) was a wonderful one!
Hugs,
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
|
|
|
|
|
09-14-2006, 11:59 AM
|
#6
|
|
Senior Member
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
|
Being a RN i understand all your concerns. After my dx of course, i try to call people RIGHT back as fast as possible. I also go out of my way to get the results from the hospitals. But with that said, i know nurses that don't want to call people back with bad news or they don't want to go out their way to LOOK for results for patients. Dr's are also bad about this. They are just plain too busy to go out of their way looking---and that's where a good hearted nurse is always appreciated!!
|
|
|
|
|
09-14-2006, 08:32 PM
|
#7
|
|
Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
|
So glad your news was good news, even if you had to wait for it! It is nervewracking to have to wonder about test results.
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 12:20 PM.
|
Linear Mode
