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Old 09-13-2006, 06:58 PM   #1
Johnnag85
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Join Date: Sep 2006
Location: Bellville, OH
Posts: 14
Lymphatic Lungs

I was diagnosed 1 year ago with Her2+++, Stage 3a; Multiple lumps-largest was 1.2cm;6 of 14 lymphnodes positive;Invasive ductal carcinoma; Had lumpectomy, AC for 4 cycles;Taxol and 6.5 months of weekly Herceptin, before heart weakened from 76% to 46% and I stopped Herceptin; 7wks radiation to original site. Started Tamoxifin in Jan, 06.

It has been 6 weeks since Herceptin has stopped when I developed daily back aches, shortness of breath,slurred speech, dizziness, blurry vision. Hands and feet swelling and falling asleep, fatigue, 15#wt gain.
Had Brain MRI-negative.
Had Bone Scan-negative;
Had Ab/Lung CT-found a dozen spots on both lungs.
Had PET scan- inconclusive due to nodule size.
Went to neurologist- everything ok
Had eye exam 6 wks ago, got new contacts- went back yesterday due to blurry vision, my prescription had changed in that 6 weeks- she doesnt know why- she said I have swelling behind my eyes.

My concern is of course the lungs , the blurry vision and slurred speech.

Please anyone with knowledge or personal experience please comment. I am 39, with 5 kids, the youngest age 2. I have basically become an advocate for organic foods, vitamins and vegi diet.

Open to any and all comments. Thank you all in advance.
Johnna
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