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Old 09-07-2006, 07:19 AM   #1
koolbreeze
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Join Date: Aug 2006
Location: St. Louis Mo
Posts: 57
Inflammatory Breast Cancer

For those of you who have not heard of IBC, here is a link to some video clips that KOMO TV in Seattle aired. Inflammatory Breast Cancer is often misdiagnosed and is not very well known. It is critical that all women are aware of IBC and what the symtoms are because there is no lump and it rarely shows up on a mammogram. As a result, it is usually in later stages by the time it is correctly diagnosed. KOMO has done a fine job of presenting this information and the word is getting out about IBC. I sent the video to 15 or so women and most responded back to me that they were unaware of this type breast cancer.

Just thought this was worth a post. Kool

http://www.komotv.com/ibc/
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Kool

DX 3/05
Stage IIB 1.3cm w/ lymph node involvement
ER+++PR+, HER2+++ G3
Surgery - Left mastectomy 4/05, Lymph node removal 5/05, breast expander removal 6/05, partial thyroidectomy 7/05, Right mastectomy 1/06
Post Menopausal due to hyserectomy 2/03 (took hormone replacement)
Treatment - A/C, Taxol and Herceptin, Herceptin only (finish 10/06), Arimidex daily.
Age 50
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Old 09-07-2006, 08:00 AM   #2
tousled1
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Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Good article. I myself had not heard of IBC. I'm learning more about breast cancer than I ever thought I would need to.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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