Al,
But then there is the good news, too. Hannah in the UK reports that her sister's onc put her on just Xeloda for her brain mets. And she did respond well. They are waiting to get the Tykerb there, now.
There is also a gal who has posted here that she was in one of the Tykerb trials, with brain mets. But, she did not respond.
That's why I think it's fairly important to TRY something that has shown response, cuz' one just never knows. This includes the Tykerb, ofcourse.
Medical oncs have little choice when presented with a patient who has brain mets. Referral to rad onc is sop. They've had nothing decent in their 'bag of tricks' to offer us. This Xeloda response has got to be great news for them, I think. I know my onc is really delighted that I am still here, and have responded for almost a year on the X/T combo.
Maybe the reason for the small study reported by Lani was the hopeful report of the previous small study using Xeloda/Temodar for specific bc brain mets. They want more input.
When the Tykerb becomes widely available, that will also cause a similar reason to smile...
Best wishes, Al xoxo
pattyz
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