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Old 07-05-2006, 10:15 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Question MRI of brain?

I have been having really bad headaches since June 23rd. Its not normal for me to have headaches. Its a non-stop headache! It worries me. Although I do have TMJ and did have alot of dental problems prior to all this. I am hoping the TMJ is the cause of my headaches? (Knock wood)

But you all know when you have a bc you worry. I finally got to see my onc on July 3rd and I mentioned this ongoing headache. She did order a MRI. But its NOT until 8-14-06. That will be 43 DAYS till my MRI. I am suppose to suffer with this headache until then? I have tried advil, norco & tylenol.

When any of you have had a brain MRI ordered for you....did you have to WAIT so long to get in? I think my onc would of gotten me in sooner. I KNOW they can because once they thought my port had a clot and got me in to a doppler that day. STAT.

I have time NOW to do the MRI...by 8-14 I should be having Rads by then, which means I will be SO tired from what others have told me. Why NOT do it now while I have this down time...and plus I don't want to worry about this headache being mets. I've had this headache for 13 straight days already...I can't stand the thought of waiting ANOTHER 43 days. Its a BAD headache!

Did any of you have to wait that long? Maybe its the norm?

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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