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Old 06-15-2006, 04:55 PM   #1
Lisa
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Looking good

Friends,

In the past 2 weeks I've had PET/CT fusion, brain MRI, and spinal CT. The news is...are you sitting down....don't get that excited...it's not NED...BUT it isn't bad. I'm continuing to be stable. Which means no brain mets, mets on some ribs (we're watching them closely near the spinal column), and still some mets in liver.

AND my onc is now going through the paperwork for me to get Tykerb. We shall see.

Oh, and please send any amount you can to help Lyn's family. She went through so much and still kept us posted. She was a true "web friend."

Love and light,

Lisa
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Old 06-15-2006, 05:14 PM   #2
RobinP
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Smile

Thanks for the update Lisa, good for you being stable. Praying you get lapatinib and for wellness. Robin
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Old 06-15-2006, 06:14 PM   #3
Lolly
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Lisa, your update is a bit understated for such grand news, but that's ok, we'll cheer on the sidelines! Keep up the good work kiddo.
And, my check's in the mail.

<3 Lolly
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Old 06-15-2006, 06:16 PM   #4
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Lisa;

So happy to hear the good news!! Of course NED would be better but it's on it's way!! Can I email money for Lyn? I live in Canada and I send money to my kids this way all the time....(right....they're students).

Cathy
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Old 06-15-2006, 06:23 PM   #5
Sandy H
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Lisa thanks for the update. You are a legend also as you have fought quite the battle and yet you keep going. You continue to help others despite having your plate full. I hope you get the new drug as my oncologist is trying to get it for me. I will let you know how it goes as soon as I hear anything. Sending you a big hug, Sandy
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Old 06-15-2006, 08:23 PM   #6
RhondaH
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Thank you for the news Lisa...

Now we pray that the Tykerb will wonders for you.

Rhonda
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Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 06-15-2006, 09:29 PM   #7
Tom
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Smile Wow !

Way to go Lisa. Now get on the stick and be one of our Tykerb guinea pigs...lol. Many of us have been waiting a long time for lapatinib to get to market, so we will be rooting for you all the way.

Best Wishes,
Tom
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Old 06-15-2006, 11:48 PM   #8
karenann
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Wonderful news!

Love and hugs,

Karen
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Old 06-16-2006, 03:05 AM   #9
chrislmelb
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Great news Lisa

Christine
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Old 06-16-2006, 07:02 AM   #10
al from Canada
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That's really great news...you continue to amaze.

Al
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Old 06-16-2006, 07:49 AM   #11
anne
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Great to hear Lisa.

You deserve some good news. Take care and hope Tykerb will be the one to give you NED.
Love,
Anne
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Old 06-16-2006, 08:18 AM   #12
Esther
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Awesome Lisa! That's great news.
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Old 06-16-2006, 12:48 PM   #13
tousled1
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Great news Lisa
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 06-16-2006, 01:34 PM   #14
Helen
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Great news! Keep us posted.

Helen
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  • Diagnosed May 2005 8 months after giving birth. Stage IV due to a single liver mets.
  • Carbo/Taxotere/ Herceptin combo for 6 months
  • Herceptin/ Navelbine
  • Recurrence on the same liver spot in 7/07
  • Liver resection 9/07
  • Tykerb/xeloda 10/22/07
  • NED since 9/07 and continued Tykerb/xeloda
  • PET/CT in May 2009 show small spot in lungs. Continued Tykerb/xeloda
  • PET/CT in Aug 2009 shows progression on lung nodules (slightly bigger)
  • Onc considering Taxol/avastin
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Old 06-16-2006, 04:17 PM   #15
lindaw
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Dear Lisa


That is great news. You sound happy.

love
lindaw
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Old 06-17-2006, 11:27 PM   #16
mamacze
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WOO HOO!!! This is stand on the fence and hollar "I HAVE BEEN THROUGH HELL BUT NOW I AM ALMOST NED" news! Way to go girlfriend! Now you hustle and get that Tykerb and keep us posted on how it is for you...God willing you will soon be totally NED!

Love kim from CT
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