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05-16-2006, 10:08 AM
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#1
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Lyn
I haven't heard from Lyn for awhile, I see she posted earlier this month while I was on vacation but no word since. Lyn, if you see this hope you can give us an update. Your pithy observations on our shared situations are missed!
<3 Lolly
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05-16-2006, 10:35 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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I have been thinking of her as well.
Barbara H.
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05-16-2006, 12:20 PM
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#3
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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I hope we hear from her soon. Sandy
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05-16-2006, 02:52 PM
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#4
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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We received this email today:
"Hi Christine, I am writing on behalf of my sister Lyn she hasn't been able to contact you because she is having trouble with her broadband, she is all so very sick, she was having radiation and it has had to be put on hold because every time she had to lay flat on her back she was having trouble breathing, tomorrow she is seeing about a new drug at the Mater Hospital in Brisbane, but she doesn't know whether the damage that has been done is reversible. Please feel free to email back to me as I will pass on any replies you send.
Thank You Dawn"
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05-16-2006, 03:45 PM
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#5
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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I truly hope things get better for Lyn.
Lyn has been so brave.
Her writing, honesty and openness and wry humour is compelling.
I wish you all well at this difficult time.
RB
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05-16-2006, 04:40 PM
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#6
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Thanks Joe for keeping us posted. I will keep her in my prayers. Sandy
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05-16-2006, 06:31 PM
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#7
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Thank you Joe... I'll be keeping her in my thoughts and prayers and hope the treatment she's checking into will work for her. I know if anyone can rally from a setback, it's Lyn, the Living Legend, emphasis on the LIVING!
Lyn, Hugs and Prayers to you.
<3 Lolly
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05-17-2006, 05:15 AM
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#8
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Lyn
You are in my prayers....you have such strength in all your battles, and rally every time the odds are down....know that we are thinking of you and praying your new treatment is tolerable and successful....you truly are a living legend that many of us look up to!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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05-17-2006, 05:49 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Thank you Joe...
I will keep her in my thoughts and prayers.
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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