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I do not suffer from mets to the spleen but oddly, during my last herceptin infusion, I met a new woman who has been getting herceptin alone since November for her 3rd go around with breast cancer (in the last 15 years). She had mets to the spleen and bones. Her first recurrence was local and came within 18 months of her initial diagnosis. She uses my onc who tested her new tumor for Her2. She is quite elderly so he is giving herceptin alone and it is working. She is also getting tamoxifen versus an AI because she has very bad osteoporesis. Our onc initially tried Faslodex instead of tamoxifen but she couldn't tolerate it.
I gave her all the info about Tykerb and so she can make an informed decision when it is available because she takes it weekly but has some infusion problems so she gets herceptin over a 2 hr period (which is longer than the 3 week regime) and would love to try an oral drug.
She did say our doc told her that spleen mets are rare (period) but more common if you have liver mets (which she does not). But she did say its rare no matter what.
I think if you are worried, you should insist on a scan to put your mind at ease but it is probably nothing (and the compensation of protecting your right side could very well be what is happening).
Warm regards,
Becky
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