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Old 03-08-2006, 04:10 PM   #1
juanita
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Location: indianapolis, indiana
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glad to be around

Yesterday was 1 1/2 years since my surgery. Boy am I really glad that I'm still around. And really glad I switched oncs. I never expected to be here because the first onc I had only emphasized the negative numbers that chemo doesn't help. I was only stage 1 but he made it sound as if I was going to die at any time. And at that time I didn't know I had a choice. So those of you who are just starting this journey, the choice is yours. If you don't like the onc for any reason, change dr's.
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Old 03-08-2006, 04:34 PM   #2
Sheila
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Juanita
Congratulations on your first 1 1/2 years with many more to follow!!! You are so right...it never hurts to get a second opinion, or third, or fourth...it is OUR life we are dealing with.!!!
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 03-08-2006, 06:31 PM   #3
Becky
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Here here. I am also 18 months out.


Best wishes

Becky
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Old 03-08-2006, 06:54 PM   #4
Maggie
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Thumbs up

and.... I'm 20 months out! I can't believe this much time has gone by, already. I also can't believe how much I have learned and am still learning about breast cancer.Maggie
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Old 03-08-2006, 09:09 PM   #5
sassy
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So true about oncs

Congrats!

I am one year out. My first onc did not test me for HER2 and basically told me I would be dead in 10 years. So glad I changed oncs, was tested for HER2, and was given a whole different scenario with Herceptin.

Sassy
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Last edited by sassy; 08-22-2011 at 08:42 AM..
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