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03-04-2006, 12:58 AM
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#1
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Original Member
Join Date: Jan 2002
Posts: 6
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Long time survivor, my treatment
Dear everyone.
I have been asked, if I would share my treatment choises with you. I will be glad if it can be of any interest for some of you. First a little information. I was diagnosed in 1997 and I live in Denmark. I have bc in both my breast and metc. to skin, nodes and both lungs. Stage 4 for the last 5 years. Here is my treatment during the years with bc.
Please let me know, if some you out there are thinking that other drugs would be an idea. Next week I have my ct scan, my onck. and I are planning to switch to Alimta together with Herceptine, because my lungs are getting worse.
Here is my treatment during the years:
1997
9 rounds of CMF chemo kombination
6 rounds of Epirubicine
1999
5 Rounds of Taxotere
Hercetin alone for nearly 2 years
2002
Iressa for 4 month
Xeloda for 4 rounds
Herceptin and Navelbine nearly a year
2004
Herceptin and Carboplatin 8 month
Herceptin and Gemzar 8 month
Next choise Herceptin and Alimta
Any other idea?
Kind regards
Helle
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03-04-2006, 04:10 PM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Helle
I don't have any suggestions, but you give us all hope being Stage IV for 5 years.....thank you for sharing
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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03-04-2006, 06:32 PM
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#3
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Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
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Dear Helle,
It's great to hear from your again. I have wondered of your where-abouts.
Consider avastin as it has shown favorable results in HER2 disease.
Talke care,
al
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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03-11-2006, 09:06 AM
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#4
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Guest
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Dear Helle
Thanks for sharing. A truly inspiration to all of us fighting with mets.
Best of luck!!
Toril
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07-15-2006, 01:36 PM
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#5
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Junior Member
Join Date: Jul 2006
Posts: 4
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Dear Helle
My name is Bitten, I have just made a threat on this homepage, which you can read if you like. I am from Denmark as well, and have been reading your mails about your treatments. I am curious which hospital in Denmark you are using, and which you with your experience will recommend for patients with BC, HER2 positive, spreading to the lungs with metastases ? How are you doing with the Alitma ?
I wish all the best for you.
The best
Bitten
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