Sandy
This was similar to the recurrence my sis had, hers was in the axilla, which her surgeon removed and in her supra clavicular area. After her surgery, her surgeon recommended chemo, but her onc said that the supra clavicular area was a local recurrence and so should be treated by localised treatment i.e radio therapy. This was confusing to say the least. So my sis had a pet scan which showed a hot spot in her lung, and that decided it - chemo. Changed oncs at that stage too. So she had paclitaxol weekly, then when the Her2 test on her axilla surgery came back, Herceptin was added weekly. This kept things stable but not shrinking, so she switched to nevalbine and contnued the herceptin. Again stable but no shrinkage. All along she had been told there was a window for having radio to the supra clavicular area as if things took off again she could have real problems with her arm / hand. So, after 3 rounds of Navelbine / Herceptin, she took radio, 25 x - which did the job on the neck nodes. She is still fighting with the lung mets. You may also want to look at the post about radiation necrosis / fibrosis treatment about a French study combining pentoxifylline and Vit E to help.
Best wishes
Sue M
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