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Old 12-27-2005, 04:38 PM   #1
Kristin
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Join Date: Sep 2005
Location: Connecticut
Posts: 20
Unhappy Insurance won't cover anymore rehab

My mom has been in a rehabilitation/nursing home for the past 2 1/2 weeks. She has Health Net which has been covering her stay and physical therapy. She was diagnosed with mets in the spinal fluid which has her unable to move from the waist down. She has had 8 treatments so far and we are waiting on the results of the spinal fluid. We are hoping the treatment will start to work, and also allow her mobility again, however, since she has not shown any improvement in PT, the insurance will stop covering her there. I am so angry that they can do this. Don't they realise that she wasn't recovering from a car accident, it takes at least 6-8 treatments of chemo before it starts to work and then there may be improvement. The place is $380/day which is not pratical for anyone to pay even if they made a decent living. If anyone knows of anyone to talk to about this or if there is anything legally we can do, any advise is greatly appreciated. I am praying that she will show signs of improvement over the next week in physical therapy, but I know she needs to go at her own pace, not the pace of the insurance company. It is so fustrating, not only is this hard on my mom trying to get better, but now my dad has to deal with figuring out what to do next. Thanks for listening, it has been a difficult month, and I just have to have faith that it WILL work out.
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Old 12-27-2005, 06:30 PM   #2
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Kristen
I am so sorry about your Mom. If they are talking about moving her out, what about home health and PT at home. Also, I would talk to the Dr....he can override the insurance company if he says she is too sick to go home and needs the care ther....if there is anything I can do to help you, please let me know....don't give up...there is an answer to fight the insurance company.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 12-28-2005, 08:42 AM   #3
Kristin
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Join Date: Sep 2005
Location: Connecticut
Posts: 20
Thanks Shelia, I am meeting with the case worker from Health net next Tuesday. My mom's oncologist will write a letter stating that she should not be moved, etc. I just pray she starts to show some improvement between now and then. It is so difficult trying to stay strong for her, especially with the insurance company being this way!!!
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Old 12-28-2005, 07:38 PM   #4
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Kristin

DONT GIVE UP...Ask the Dr. for help...he CAN keep the treatments going and her where she is....the insurance companies will not go against what the Dr. prescribes...unless the want a lawsuit...be strong...you and your Mom are in my prayers.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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