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12-02-2005, 01:10 PM
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#1
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Senior Member
Join Date: Nov 2005
Posts: 943
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Cardiac risk for early stage herceptin????
So just wandering what the cardiac risk are for Herceptin long term as I am considering late Herceptin for early stage bc. What do we know about the longer term side effects from the metastatic population that has recieved Herceptin? How long have they been taking Herceptin etc. without cardiac problems. Any information to help me fill in this gray area of knowledge would be appreciated
RobinP.
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12-02-2005, 01:12 PM
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#2
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Senior Member
Join Date: Nov 2005
Posts: 943
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Any other orgin long term side effects from Herceptin???
Are there any other long term known side effects from Herceptin that we know of from the metatastic population that has been taking the drug?
RobinP.
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12-02-2005, 04:59 PM
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#3
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Robin
I have been on Herceptin for 28 months now and no cardiac problems and hopefully no long term side effects...the runny nose, terrible nails and tired for a day seems to be it...oh & some weight gain. Hope this helps.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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12-02-2005, 06:18 PM
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#4
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Generally, if you have no cardiac problems in the first 6 months, you probably never will.
Christine has been on Herceptin 65 months, Ginger Empey has well over 120 months, Philicia Bowman about 75 months. None have hadany long term side effects nor have I read of anyone having negative long term problems. Herceptin has only been approved a little over 6 years now.
Warmest Regards
Joe
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12-02-2005, 07:02 PM
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#5
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Senior Member
Join Date: Nov 2005
Posts: 943
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Thanks Joe and Sheila, I appreciate the input. So does the metastatic population get about the same dosage and schedule as the early stage, every three week regimen? I appreciate your help here.
Fondly,
Robin
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12-02-2005, 07:46 PM
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#6
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Robin,
Dosage is determined solely by your body weight.
Regards
Joe
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12-02-2005, 09:17 PM
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#7
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Hi Robin; I've been on Herceptin either weekly or 3 weekly since January 2001, a total of 58 months now. I've had no long term side effects except the runny nose and being tired for a day noted by Sheila. My nails have always been weak, and though I've gained weight in my opinion that's due to eating more, exercising less  Good luck!
<3 Lolly |
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