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Old 05-24-2005, 06:16 PM   #1
eric
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Hi all,

Some great news...my wife Caryn just had her 2nd series of scans (CAT and PET) since being declared NED in January and still NED. YIPPEE!!!! I hope this serves as hope for many others. Just as a reminder...she was diagnosed stage 4 with mets to lungs and liver 7/04 and took gemzar and herceptin until the end of December.

Warmest regards to all,
Eric
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Old 05-24-2005, 06:50 PM   #2
joy
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Awesome, Eric and Caryn! that is great news for you and thank you for sharing with all of us!
Love, Joy
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Old 05-24-2005, 07:04 PM   #3
madubois63
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This is wonderful news!!! I pray that your wife will be dancing with NED for a very long time.
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Old 05-24-2005, 08:05 PM   #4
Sandy H.
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Wonderful news! Let's keep them coming. We all love to hear NED. Sandy
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Old 05-24-2005, 10:06 PM   #5
Lauren H
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What fantastic news, Eric!! I'm so happy for both of you.

Thanks so much for all of the interesting articles that you post! I appreciate it!

Lauren
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Old 05-24-2005, 10:21 PM   #6
StephN
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Great news for Caryn! She can get over her chemo side effects and you can watch her regain her stamina. It is the little things that will be meaningful - but they will build on each other until things are feeling closer to "normal" again.
With a caring helpmate like you, she can't help but beat this awful disease. I know my husband has taken a lot of pressure off me and is kind enough to thank me for nice meals!
Long may NED be part of your family.
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Old 05-25-2005, 07:47 AM   #7
Audrey
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Eric,
Congratulations to you and your wife for this happy news! Thanks for sharing it with the rest of us--I'm so happy for you both. Celebrate! Audrey
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Old 05-25-2005, 10:39 AM   #8
lorri
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Eric, Congratulations to you both! How wonderful! News like this gives me great hope also. Thanks for sharing. P.S Will Caryn still receive Herceptin weekly or every three weeks? lorri
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Old 05-25-2005, 01:46 PM   #9
Rozebud
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That is WONDERFUL Eric. For some reason I was thinking if she got to NED you were going to look into a vaccine trial?
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Old 05-26-2005, 03:10 AM   #10
eric
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Thanks to all for your good wishes.

Rosebud, you're right, we hope to get started soon with vaccines at UWA and the scans were the final step. I will certainly let everyone know and share her experiences.

Lorri, Caryn's receives weekly herceptin since stopping chemo the end of December. Although we would love to switch her to every 3 weeks, we don't want to take a chance messing with success. I know the stats say it's as successful but we don't want to take any chances.

Love,
Eric
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Old 05-28-2005, 11:07 AM   #11
StephN
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Hi Eric -
I went on 3-weekly Herceptin right after getting off chemo and beating out my awful liver mets. Also got Zometa at the same time for over a year, then cut that back to every 6 weeks.
You know I am still NED for 3 years next month (except for brain mets that nothing we took could change anyway).

Caryn may also be a candidate for Zometa to help build up and protect her bones. Not sure if this does anything to the vaccine trials. For the one I was talking about, it did not matter.
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Old 05-28-2005, 06:52 PM   #12
eric
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Hi Steph,

Funny you bring up Zometa, since it was the one thing her onc agreed to give her even without bone mets. She started the Zometa when she started the herceptin and has been getting it ever since.

Thanks,
Eric
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