|
Good Evening Ladies!!!
I have posted here before, mostly last year, and now I am back. I check in the sites at least a couple of times a week, and post when I see someone needs some advice, as a been there done that kind of gal...
But, now... I find myself in need of guidance...
I was diagnosed last year at 33 years old as stage 3 B. five nodes positive, and only her2neu positive, not hormone positive. I completed 4 rounds on AC and 12 weeks on Taxol then the tanning of the skin in 8 radiation spots. I finished chemo in October last year and radiation in January.
I was at my first 3 month check up on Tuesday and was told the amazing news, that my doctor wants me on herceptin. I am in a little pickle with being in the herceptin clinical trial in the arm of standard treatment and observe. Well, then I also lost 16 points on my MUGA going down to the lowest of a 42. I am back up to a 53 right now, with another test tomorrow. I may drop out of the study to go forward if they do not support my MUGA results as I did drop significantly...
But here is the deal...
I had a meltdown on the way home from the hospital.. my friends and family are supportive, but I dont think they get what I went through last year. I am not back at 100%, but I feel I am on my way. Weekly treatments for a year is a HUGE committment.. dont get me wrong, I am going to do EVERYTHING I can to beat this and stay on top, so it isnt like I am waffling at the thought of treatment, but can anyone understand the emotional drain that goes with it????
I am looking for someone that has moved forward, is out of treatment, and how they are doing with it. I dont see in looking at Herceptin side effects that they are as "dramatic" to the eyes as the chemo last year.. for example hair loss, fatigue.. but if someone can let me know, maybe even validate what I am feeling, I would sure appreciate it!!!
Much love to all...
|
Threaded Mode