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11-19-2004, 10:43 PM
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#1
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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I got the results of my follow-up CT, after 6 months of Navelbine/Herceptin for 2nd recurrence to lymph nodes: No sign of recurrent cancer to previous areas of concern, clinical remission of recurrent cancer maintained by Herceptin...Yeah! My oncologist's nurse has faxed the report to Seattle, am waiting to hear back from the clinical trial coordinator to schedule an appointment for my first visit and hopefully, first vaccine.
Thanksgiving will have a very special meaning this year.
Love, Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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11-20-2004, 12:48 AM
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#2
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Yeah! That is what I was hoping to hear from your end. Let me know when the appt date is set and we can coordinate from there. This is a new chapter for you and it will write itself!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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11-20-2004, 07:45 AM
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#3
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Guest
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Thanks Steph, I'll let you know as soon as I hear from UW...I don't think I'll be scheduled for Thanksgiving week, but if they offer me a spot then I'm sure gonna take it!
Love, Lolly
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11-20-2004, 04:35 PM
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#4
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Guest
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Dear lolly
Great news> Feel very happy for you. Celebrate!
love
linda
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11-20-2004, 06:12 PM
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#5
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Guest
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Great news Lolly, thanks for letting us know. God bless you in Seattle. Hugs, Sandy
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11-21-2004, 01:05 PM
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#6
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Guest
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Great news, Lolly. I'll be praying for you. Blessings, Lu Ann.
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11-21-2004, 03:17 PM
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#7
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Guest
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Lolly,
That is such wonderful news. I am so optimistic about the outcome of this trial. I have one more vaccination to go and so far no ill effects. My tumor markers seem to be on a very gradual downward trend. Last week they reached the lowest point they have ever been since we started tracking them back in 1997, after my innitial diagnosis and treatment.
Best Wishes, Kim
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11-21-2004, 06:53 PM
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#8
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Guest
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Wonderful news Lolly!
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11-21-2004, 06:54 PM
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#9
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Senior Member
Join Date: Nov 2004
Location: Olathe, KS
Posts: 107
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Sorry Lolly, that was me (Rose) above.
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11-22-2004, 11:26 AM
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#10
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Member
Join Date: Nov 2004
Posts: 6
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What great news Lolly! I'm so glad to hear it!
Hope you have a Blessed Holiday! :)
Lindsey
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11-22-2004, 03:54 PM
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#11
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Guest
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Great news, Lolly!!!
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