Julie...

Julie,

Your message struck a nerve with me. I can't imagine your grief, but wildly salute your fighting spirit.

In searching for any answers, the most common treatments, which I'm sure you've tried, seem to be massive doses of antibiotics. Otherwise, I just copied the following for you. Pitiful, I know.

I wish I understood why all this happens. It makes no sense to my feeble human mind. My heart goes out to you and your family. I know you are surrounded by love, and I can only pray that this helps.

TREATMENT:

1. Amphotericin B injected I.V. and into the subarachnoid space. NOTE: This is poorly absorbed into CSF. Treat for 6 weeks.
Toxic. Amphotericin B is also available in a liposomal preparation that has enhanced penetration.

2. Fluconazole

3. Ketoconazole

4. Itraconazole

5. Flucytosine (5-fluorocytosine)-penetrates into all body fluids, including CSF. Less toxic but higher doses required.

Whatever regimen of antifungal drug therapy is used, surveillance is an essential part of treatment. Examine CSF weekly for all parameters
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Sending so much love and light your way,

Lisa