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Old 10-21-2004, 11:38 AM   #1
al from Canada
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I want to thank everyone for their input. We are getting another professional medical consult tomorrow but the way it looks, we will fight for the Xeloda + Navelbine + Herceptine with the confidence we will achieve results. We know something is keeping it at bay now and one would think adding another drug will augment that, especially with HNX combination. It has a fairly solid track record for liver mets without sacrificing too much Q. of L. This has become a big issue as Linda has lost a ton of weight and can't afford to lost anymore; we also can't afford too much havoc with her blood counts. That being said, thank you Christine (and Joe) for your on-going devotion and dedication to this site as without it: we wouldn't have the two pieces of the puzzel to make informed decisions. #1: empiracle data and #2: the human equation which, with every post added another piece. Thanks Lolly for the excellent web reference.I don't think that cell search is available in Canada but I will check into it. I agree that a clinical trial may lie further down the road however the point of no return needs to be pushed much further back. As far as I can tell, because I have checked into it, a PET scan is almost impossible to get where we are. I may have to check into Cleveland for that one. We have had past discussions on this Board on concurrent hormonal / chemo therapies and unless I am mistaken; that is not recommended. Blood tests have shown that Anti-estrogen is moot.
More input still welcome and let's keep fighting this together.

Al
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Old 10-21-2004, 01:23 PM   #2
Lolly
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Al and Linda, just want to add that I just finished 6 months of Navelbine in combo with Herceptin, this is the second time on Navelbine for me and both times have had excellent results with very manageable side effects. Although my mets are just lymph system, I know some of the gals have had organ mets and Navelbine has been able to knock them out, so if you do decide that the NHX combo is the one, best wishes for a good and complete response...we'll just keep praying for that!

Love, Lolly
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Old 10-22-2004, 01:45 AM   #3
Christine
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Al and Linda
Please check again on hormone inhibitors, as I have heard of more progress made by blocking hormones. Ask others here. Afriend went into remission faster with hormone inhibiter. A few months may help. Stay positive. HUGS
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Old 10-27-2004, 10:07 AM   #4
Ann
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I, too, just finished a 4 months on Navelbine/Herceptin after lumpectomy w/lymph involvement. Had virtually no side effects with it. Had previous neoadjuvant chemo prior to that due to 5cm tumor, w/A/C/Taxotere 8 rounds. Since I'm HER2 positive my onc feels that Femara is the way to go for now. Have not had any further mets so far, but just coming out of radiation too in 8/04. Wondering what's next.
Have monitored this board for a long time, and am very grateful for all of your warm, caring input.
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