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Old 09-19-2008, 07:03 PM   #1
Les
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Join Date: Jan 2006
Posts: 42
tamoxifen

Hi All, I was wondering if anyone has had this happen,I have not been very good lately about taking my tamoxifen everyday and up until today had not had a period for almost 18 months well surprise!!!!!!!!!!!!!!!!! could not taking tamoxifen allow ovulation? My friend reminded me that2wks ago I said that if I didn't known better I would think I was ovulating.I was due to have my estrogen levels checked last month but because I have recently been dealing with melanoma and surgery I couldn't handle going to two onc.in 1 wk so I will see my bc onc next month . I am 50 so I really thought that I was done............ thanks for any advice Leslie
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Old 09-19-2008, 07:15 PM   #2
Becky
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Location: Stockton, NJ
Posts: 4,179
This happened to me. I was off Tamoxifen for about 4 wks (because I was going to get an ooph and go on Arimidex which I did do). Onc took me off because of surgery. I got my period (3 wks after I was off and had my surgery a week later). I was almost 47.

Take your Tamoxifen! Or at least tell your onc you are not taking it. Then the onc can at least put you on something else or at least know (and yell at you too)!

30% of women don't take their tamoxifen or AI consistently or at all after 1 yr of diagnosis so you are not alone.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 09-19-2008, 07:30 PM   #3
Gerri
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Location: Southern California
Posts: 900
Leslie,

Listen to Becky, she is our "all things hormonal" guru. It really sounds like you are dealing with a lot of scary things, all at the same time, but you really do need to do all you can to keep the monster at bay. I also had melanoma (many years ago) but find it interesting that many of us with bc also had melanoma in the past or are diagnosed with it after our bc dx. One of the BRCA genes increases your risk, but I tested negative for both. I was fortunate in that my melanoma had not spread and all I needed was clear margins on excision. I hope that you are as lucky. Please keep us updated.

Take good care,
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Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault

Last edited by Gerri; 09-20-2008 at 06:58 AM.. Reason: spelling
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Old 09-20-2008, 04:49 AM   #4
Les
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Posts: 42
Thankyou Becky and Gerri I WILL be back on the tamoxifen train today and not miss a day again and hopefully this will not happen again.I was feeling really good about things being almost 5 years out from dx and the melanoma scared me, I am lucky with both though stage1 bc and 1b mel.no nodes. love to you all Leslie
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