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Re: Fri the 13th Scans... Any News?
Denise,
I've been thinking about you, cuz guess what??? My neurosurgeon is looking in to avastin for me. I will find out on Tuesday what will happen next. My radio/SRS doctor said he was worried because of the swelling, which worried me. However, my neurosurgeon made me feel better because he things that it still looks like necrosis and the swelling is a bit more, but not by much. He said another scan in 2 months. I'm going to pray to every god out there for shrinkage within the next two months. In the mean time Avastin may just do the trick. I'm up to 8mg per day now, which you know, is good. SO....hey, twin, we may be in this together fully if I get on the Avastin. Surgeon won't do the surgery either. Not a good idea at all!
Love ya! Jill xoxo How you doing Denise?
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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