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Old 06-21-2007, 07:27 PM   #1
romo9
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local recurrence after radiotherapy?

Dear all, I could really do with some advice. I was diagnosed in oct 04 with a 3cm her+++ tumour and 18 positive nodes. Prior to diagnosis I had cording in my axilla and a red flush on my breast. The tumour was not diagnosed on mammogram or ultra sound initially. Had chemo, radiotherapy to nodes and axilla and a lumpectomy. I have just finished 2 years of herceptin.
Three weeks ago I woke up with a red flushed breast that was swollen but no pain. (I had had a bad virus with a temperature prior to this and it continued for a further 2 weeks.) I immediately went to see my surgeon who put me on antibiotics and ordered a mammo and ultra sound and bloods. All the tests were negative and the swelling and redness went down somewhat. Now I am left with a more localised residual redness and a thickening after two weeks of antibiotics. My surgeon says cellulitis is common after radiotherapy - But over 2 years later? My question is - could the supposed cellulitis be a red herring is it possible to have local recurrence after radiotherapy or am I just being paranoid?
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Old 06-21-2007, 08:39 PM   #2
Bev
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Just guessing. Shingles? Could be cellulitis, doesn't sound like IBC. Keep after them and get some sort of answer. BB
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Old 06-22-2007, 01:55 PM   #3
tricia keegan
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I am over a year finished rads and can still feel a hurd lump area which itches and gives me some mild pain. My surgeon said it's radiation induced fibrosis which in some people can last years. It does make me nervous though and glad my next mammo is due soon..just in case!
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 06-22-2007, 09:33 PM   #4
Adriana Mangus
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Cellulitis

Dear Romo: It sounds more like cellulitis, I have had at least three separate cases of cellulitis on my rt arm, (removal of lymph nodes-underarm) and even now after more than 12 years I do get redness on my arm and swelling. Do not get paranoid; all tests were negative; keep that in mind.Take care.
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 06-22-2007, 11:17 PM   #5
Catherine
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I am not sure what all this means. My radiation was over Dec 06. I started PT about March 07 and continued thru June 07. My PT taught me a lot about stretching my arms, chest, and skin. She worked hard to "loosen"
my facia. My massage therapist is continuing this. I do not know if any of this stretching relates to celluitis? I do not even know what that is. But I am very thankful for what my PT has taught me about my body, range of motion and my lymph system.

Take care, Catherine
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Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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Old 06-23-2007, 07:52 PM   #6
romo9
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Thanks

Dear allthanks for your imput i will see the doctor in 6 weeks to check! Romo
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Old 06-23-2007, 09:57 PM   #7
Lolly
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If you are still concerned when you see the doc, ask for a biopsy. A simple and definitive way to answer your concerns.
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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