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10-04-2009, 08:24 PM
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#1
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Senior Member
Join Date: Jun 2009
Posts: 343
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Great news after mastectomy
I got my pathology report after my mastectomy on 09/25--also got my drainage tubes removed--YEAH.
The report showed no cancer present, some DCIS and no cancer in 17 lymph nodes removed. I'm doing well but just so sore. I have exercises to start tomorrow and will be doing some physical therapy.
Will start TCH every 3 weeks for 4 months on 10/15.
Thanks to all of you have given me answers and words of encouragement 
I need to complete my bio with signature but here is the lowdown:
Age 47, TN
Her2+, ER/PR-, Stage II
Sentinel node biopsy showed speck in lymph nodes
Did clinical trial for 3 months of weekly Herceptin, 1000 mg of Tykerb daily
No cancer present at time of mastectomy and none in 17 lymph nodes removed!!!! |
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10-04-2009, 08:28 PM
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#2
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Great news after mastectomy
Congratulations !! Good luck with the therapy and chemo.
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10-04-2009, 08:30 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Re: Great news after mastectomy
Great news!!
Hugs,
Lexi
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10-04-2009, 08:30 PM
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#4
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: Great news after mastectomy
Well, I forgot to include it was the right breast and the tumor was 8 cm at beginning of the trial.
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10-04-2009, 08:56 PM
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#5
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Great news after mastectomy
That is wonderful news. Congrats! Isn't it nice to have those darned tubes removed...it's instant relief! I know your sore...but it won't be long and that too will be behind you. Hang in there.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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10-05-2009, 01:46 AM
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#6
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Great news after mastectomy
That's excellent news! May your chemo be easy on you and may you never get this or any cancer again.
Hugs
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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10-05-2009, 04:27 AM
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#7
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: Great news after mastectomy
Great news. Congrats! 8cm eh? The chemo sure did it's job well!
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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10-05-2009, 05:07 AM
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#8
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Great news after mastectomy
That is super news! There must be such relief at knowing that the chemo did it's "stuff". Hope your recuperation is quick and complete.
Barb A.
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10-05-2009, 05:48 AM
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#9
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Senior Member
Join Date: Sep 2007
Location: Dublin, Ohio
Posts: 29
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Re: Great news after mastectomy
Yay for you!!!! Nothing but good news and that makes us all smile.
__________________
Lori
Diagnosed 07/05, Stage 1
Extensive DCIS, .5 mm invasive
Mast
No nodes.
10/05 4 A/C & 1 yr of Herceptin
06 Proph Mast
Lat Flap Recon - failed on one side, replaced w/expander
NED
HER + 3, ER-, PR-
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10-05-2009, 07:09 AM
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#10
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Senior Member
Join Date: Jan 2008
Posts: 154
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Re: Great news after mastectomy
Great news!!!
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
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10-05-2009, 12:04 PM
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#11
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Senior Member
Join Date: Aug 2009
Location: Owasso, OK
Posts: 185
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Re: Great news after mastectomy
Yeah!!!! Congratulations!!!
__________________
Hayley
Oklahoma
3/35/2009 - Diagnosed, age 39
5/7/09 - Mastectomy and reconstruction started. Two tumors found. Tumors were side by side. DCIS tumor was 2.8 cm, ER-, PR-, grade 2. Invasive tumor was 1.1 cm, poorly differentiated, grade 3, ER+90%, PR+95%, HER2+3. Thankfully, no node involvement.
5/29/09 - Second surgery resulting from difficulty healing from mastectomy.
6/2/09 - Began Herceptin treatments
6/23/09 - Began Taxotere and Carboplatin treatments along with Herception every 3 weeks.
10/06/09 - Completed Taxotere and Carboplatin - Yeah!!!
10/27/2009 - Herceptin maintenance and began Femara
12/10/2009 - 2nd stage reconstruction surgery
2/2010 - Body rejected saline implant
3/18/2010 - Second stage reconstruction using silicone implant
5/4/10 - Completed Herceptin - YEE-HAA!
May '10 - Body rejects silicone implant...taking a break.
11/29/10 - Hysterectomy
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10-05-2009, 12:13 PM
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#12
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Great news after mastectomy
Celebrating right along with you!!!
Congratulations
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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10-05-2009, 01:37 PM
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#13
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: Great news after mastectomy
Great news!
Hugs ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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10-05-2009, 01:43 PM
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#14
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Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
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Re: Great news after mastectomy
Vicky,
I am so happy to read your GREAT news!~
big happy hugs,
Dana
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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10-05-2009, 04:43 PM
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#15
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: Great news after mastectomy
That is great news, the chemo really kicked butt....the herceptin will be a piece of cake now!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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10-05-2009, 04:58 PM
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#16
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Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
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Re: Great news after mastectomy
Vicky,
Starting TCH on a Thursday might work for you. My down days were day 2 and 3 then I began to feel more human. Although, "down days" simply meant sleep and more sleep. So over the weekend you can crash and be ready to go by Monday. Best wishes.
Take your anti-neusea (sp?) at the first sign of gagginess. Stock up on a bit of orange sherbert and drink lots of water.
Stay healthy.
Love,
Dana
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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10-05-2009, 07:31 PM
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#17
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: Great news after mastectomy
Thanks Dana. I had been wondering when the down days would be. I'm still not working right now--took off 6 weeks after surgery. The crappy part of that will be my husband will be working weekends. He changes every 6 weeks and begins Thursday - Saturday 7am-7pm this weekend. Did you need someone with you or just felt crappy and stayed in bed? I have some neighbors who can help with the 3 dogs if I need it.
I guess I'm asking how I will fair home alone or should I get my daughter to come and stay with me?
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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10-06-2009, 05:04 AM
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#18
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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Re: Great news after mastectomy
Vicky - great news! Congrats!!!! I did a low toxic chemo (see my stats) and I found I just wanted to nap a bunch - was really tired - but more so the first 4 weeks- then I started taking the chemo in pill format and it seemed to work better and the exhaustion was not so bad...
If you haven't heard my thoughts on good reading material - my biggest tips are these:
Get a juicer and start juicing - think this saved my bum with helping sooooo much in my energy level - as you can get so many nutrients in 3-4 cups of fresh juice and you don't have to EAT all that fiber and actual food... it is a great way to help your energy when doing chemo.
Also - my favorite book (now I use it as a daily manual) but if you ever wanted a book about how to cure (yes CURE!) cancer - please read this one.
A Cancer Battle Plan Sourcebook - by David Frahm.
there are two Cancer Battleplans - get the SOURCEBOOK - it is the better and latest version with lots more stuff in it.
It is a simple read - it explains so much and gives a TON of information on how to fight cancer.
I am doing this approach along with all the medical treatments as I have yet to hear one of my doctors say that they can cure the cancer.... they keep saying they will only prolong my life.... ugh! So, I want to live - and live for more than 5 or 10 years ---(I just turned 45!) so thinking 40 more is more what I had in mind!
Hope this helps - but while you are home and recooping - try reading this book! :-) Amazon.com has them half price almost if they have a used copy....
Feel free to email me if you want to chat about it: wheelistic@yahoo.com
:-) Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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