more lung mets- what to do??? - Page 2

fullofbeans · 05-17-2011, 07:51 AM

No Sandra I did not feel anything until my lymph growth..I had felt something in my breast tho before but they never saw it on scan (but it was there they did not look properly).. get things checked is a good policy..

TDM-1 not sure can have access to it but yes still looking at options. yes tykerb herc is only a transient treatment but for few its enough so may you be one of these.. yes the Tcell treatment could be an option if they accept me my Tcell counts is low..

again thanks for all the messages

05-18-2011, 07:32 AM

http://www.medpagetoday.com/MeetingCoverage/ASCO/20504

My mom (metastatic breast cancer to skull, bones, lungs and liver) is taking navelbine + herceptin + everolimus and it has worked to an extent for her. Xeloda/Tykerb combination didn't work for her and this was the only option we had left. Her tumor marker has halved in about two months, and the disease is stable at the moment. Tumors in the liver has shrank a bit too.

Don't know whether it will help with lung metastasis, but can't hurt to ask you doctor.

Missyw · 05-18-2011, 09:08 AM

Hi FOB,

It's me, your Seattle buddy chiming in on the joys of Navelbine. My hair thinned, but it wasn't really obvious to others. I had stomach issues with Navelbine, but Nexium helped quite a bit. All in all it was a good chemo for me. I didn't stop or even have to slow down. I know it will do the job for you!

Hugs and prayers!

mamacze · 05-25-2011, 05:38 PM

Dear FOB,
Any time we stop responding to treatment it is an awful feeling and hard to deal with.
After a good long cry, perhaps you can find it within yourself to start soaking up knowledge again.
Call Seattle and let Dr. Disis know that you are not responding to treatment. She may suggest a follow up trial. If I remember correctly, she said she would recommend a conventional treatment then schedule you for a followup for a reinfusion of your kicked up t cells to give the cancer a one-two punch.
And finally, when I had mets to all 4 lobes of my lungs, I received Herceptin and Navelbine. Within 6 months, I was NED. That was 7 years ago. Navelbine isn't bad. I didn't lose any hair. As long as I stayed on top of my blood counts and got my Procrit, I felt fine. It certainly is worth an ask; right?
Hang in there angel and stay with us. Tell us what direction you chose and how you do.
Love and Hugs,
Kim from CT

Shobha · 05-26-2011, 04:38 PM

Hi FOB,

Was looking to see if you had made any choices on the treatment plan. Adding my prayers and best wishes...

hugs,
shobha

Raquel · 05-28-2011, 06:50 AM

I recently found out I have a lung met too,it's about 1.3cm.I was told there is a trial if you have not had chemo yet for the second time,which I had already had so wasn't able to participate at this time.But,my dr is very hopefull ,as am I that this new drug will become available very soon! So for now I'm on Tykerb/Herceptin. If I find out the combination they are using in this trial I'll let you know! Your not alone,I'll be praying for you! I was only 32 when I started this long journey,keep fighting!

Sheila · 05-28-2011, 08:12 AM

FOB
Another vote for Navelbine....I did not have lung mets, but I did have a response from it, and felt it was very easy to tolerate, except for indigestion...Nexium took care of that....stay strong, you still have many options, and we are here to support you and lift your spirits.

JeanBeanie · 06-02-2011, 04:18 PM

Have your doctor check into Navelbine that is what I am currently taking for lung and liver cancer. Be pushy - it is your body. Keep us all updated - you are in my prayers.

Rich66 · 06-02-2011, 05:23 PM

Additional info on lung mets:
http://her2support.org/vbulletin/sho...ight=lung+mets

another lung med that can be used on BC:
http://her2support.org/vbulletin/sho...713#post225713

fullofbeans · 06-02-2011, 05:49 PM

I am not sure yet what my next move will be. the growth is slow but still a growth,but slow. Not sure if i switch to navelbine hercp i may not find a bigger growth. I had progressed when chemo naive at my first rounds of FEC. Taxol still an option I suppose but somewhat I am reluctant to go though that again (did lots of taxoter in 2006, and just 1.5 round bit of taxol this time, enough to loose my hair.. last year) could add rapamycin (its cheap could not do everolimus).

My breast node is smaller and may potentially be regressing (poorly vasculerised). So I have a bit of a action from current combo. or not I had cryosurged the area last year so scan difficult to interpret.

btw how is navelbine taken iv weekly, tablets ??

I may again try to target the mets directly again, it has worked for me so far, but involve financial implication to sort for that and honestly I am very tired mentally by all this at the moment.

But I look very well by the way, people keep on telling me how healthy I look. So that's alright, more than alright

Thank you all for your encouragements and knowledge

JeanBeanie · 06-03-2011, 04:53 AM

navelbine - I was taking it IV 3wks on one wk off. But last Tuesday my wbc was low - so they changed it to 2 weeks on to see what happens.

Elizabethtx · 06-03-2011, 06:04 AM

Reread your Dalai Lama quote, I think you need it right now! I know it is exhausting, but take it one step at a time. We are cheering and praying for you! Hugs!
Elizabeth

Ellie F · 06-03-2011, 10:21 AM

FOB
Have you thoroughly researched ALL clinical trial options here in UK? A lot aren't widely advertised and depend on your onc. Similarly have you looked at all the targeted/local treatment options. There may be a financial implication if you have to travel but otherwise should be free.

Ellie