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Old 08-08-2009, 05:38 AM   #41
Pam P
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Re: bone mets "too many spots to list"

Thanks again for all your help. Carolyn - thanks for sharing with me your history of this disease. After my 2nd treatment last Wed. I've not felt as well. I've had lots of problems with diarrhea and can't seem to get it resolved. I've been taking imodium, but I need to get something stronger I think. And yesterday I felt nausea, weak, and dizzy. I've lost a lot of weight since starting I think because of the diarrhea. I don't have much appetite and am trying to eat lightly to give my stomach a rest. I see the PA when I go to my treatment this Wed. so maybe she can suggest some things to help. Any ideas from you wise women?
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6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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Old 08-08-2009, 05:53 AM   #42
Midwest Alice
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Re: bone mets "too many spots to list"

Hey Pam, Good morning, Sorry your not feeling well. Try the "brat" diet.
B- bananas
R-rice
A- applesauce
T- toast

Let me know if it works. It use to work for my children.

Love ya Pam, Alice
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04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
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Old 08-08-2009, 06:09 AM   #43
Karen Wheel
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Re: bone mets "too many spots to list"

Pam - I sent this earlier on another thread - but think it could help with your stomach issues....

I have found a really good active culture capsule that is manufactured in the UK but it is sold from a company out of Redmond Washington... but my handy-dandy trusted health god-pharmicist recommended this to me when I was back in the states in November - and I had a bad case of food poisoning ... and without drugs these just healed me up in like days! I still had some here in Italy (safely stored in the fridge) but the name is:
HLC high potency capsules -
by: Pharmax LLC. Redmond, Washington.

The pharmacy is "Clarks Pharmacy" in Redmond (it is literally next door to Microsoft) ;-) But you could call them and have them ship you some - if I remember it was around 20 bucks - a bottle or maybe 30 but it was fabulous! I would highly recommned this for a distroyed stomach - and much quicker than active yogurts - most of these have little effect by the time the actually get to your hands (or your personal fridge) .... yes, they were alive when they were packaged but they die easily.

My guy said these capsules were the best he had found in all his searches - and he was right - I was sold! I'm having my friend bring me a fresh bottle next month when she visits from Redmond. As they will keep for up to a year in the fridge....

Hope this helps - try it! :-) Karen
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Old 08-08-2009, 06:16 AM   #44
Sheila
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Re: bone mets "too many spots to list"

Pam, I am so sorry to hear you are having issues....I agree with midwest Alice on the BRAT diet...it worked many times for my children and myself. Also, ask the Dr to give you some Lomotil...a prescription anti-diarrhea drug...just take as ordered so you dont overdo it. It is a med they use for uncontrolled diarrhea.
As far as supplements, I wouldnt take anything unless approved by your oncologist....they can mess up the action of the chemo and you certainly dont want that.
You are in my thoughts and prayers Pam that thinks will get easier for you on the chemo.
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Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 08-08-2009, 06:26 AM   #45
Karen Wheel
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Re: bone mets "too many spots to list"

Thot this posted but now it doesn't show ---? Hummm - will try again ---

Pam - I sent this to "jones" on her worried thread a bit ago but thought it might help your stomach issues as well.

I have found a really good active culture capsule that is manufactured in the UK but it is sold from a company out of Redmond Washington... but my handy-dandy trusted health god-pharmicist recommended this to me when I was back in the states in November - and I had a bad case of food poisoning ... and without drugs these just healed me up in like days! I still had some here in Italy (safely stored in the fridge) but the name is:
HLC high potency capsules -
by: Pharmax LLC. Redmond, Washington.

The pharmacy is "Clarks Pharmacy" in Redmond (it is literally next door to Microsoft) ;-) But you could call them and have them ship you some - if I remember it was around 20 bucks - a bottle or maybe 30 but it was fabulous! I would highly recommned this for a distroyed stomach - and much quicker than active yogurts - most of these have little effect by the time the actually get to your hands (or your personal fridge) .... yes, they were alive when they were packaged but they die easily.

My guy said these capsules were the best he had found in all his searches - and he was right - I was sold! I'm having my friend bring me a fresh bottle next month when she visits from Redmond. As they will keep for up to a year in the fridge....

Hope this helps - try it! At least give the pharmacy a call and ask to talk to the pharmacist (sorry, can't remember his name but its a guy and its a small private pharmacy and they are super nice and helpful) so you can ask him what he thinks and to explain how this helps with stomach issues - remember we Cancer Survivors are taking lots of meds and these really run havic with out systems and the flora and natural good bacteria in our insides - this might be just the thing to give you some more relief!!!

:-) Karen
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