bone mets "too many spots to list"
 

I went for my 1st treatment today of taxol/carbo/herceptin. So far this afternoon I feel fine...

It wasn't my day to see the onc., but I ran into him. Last week when we reviewed my pet/ct scan results it said moderate progression in the bones, prominence and intensity and new areas. Then is just gave one specific example of L1 going from a previous SUV of 4.9 to 13. I told my onc. I wasn't happy with the report and that I wanted a more detailed one listing all the spots and SUV levels. My onc. told me today he had talked to the radiologist and 'there are too many spots to list them all"!!! In Dec/Jan there were several spots in vertebrae - maybe 5-6 and maybe 6 ribs. Now I guess it's in the hips, pelvis, not sure where else. The rad is going to send an addendum to the report listing a half dozen of the new/major sites so I can compare those with a future scan to compare if this new treatment is working.

I can't believe this has progressed so much in so little time while I was on taxol/avastin, then gemzar/herceptin for 4 months. Scary. I really need this tch to kick butt now! I'm also looking often and waiting for a t-dm1 trial to open that I fit the criteria for and is close to home. Hopefully there will be one if/when I need to change from TCH.

Thanks for listening to another update!

Re: bone mets "too many spots to list"
 

Yes, you need to beat it back with tch. And we are behind you as you kick butt! It must be very cold up there in Minnesota. Lots of Scandinavians up there. I picture you with a Viking helmet and a mace, pulverizing those cancer cells.

Re: bone mets "too many spots to list"
 

Pam, I just hate your news! Don't care, I'm gonna swear...cover your eyes everyone! I hate this damn disease!

You fight and lick every mutated cell!

No, I do not feel better and won't until we have good news coming from you, Pam. You will be in my prayers.

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Pam, I hate your news, but I love your hard-headedness that keeps on keeping on! I'll bet the big bad TCH knocks those pesky mets out! I'm praying for you. ma

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I will add my swears and cuss words about cancer to the others...and my FIGHT cheer for you! xox Suzan

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Ask for Faslodex and/or Aromosin to be added to your treatment plan. Explore your ER+ options!! I am thinking about you.

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sending more cuss words and lots of prayers too!

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Just wanted to send you a hug.....my support and encouragement and a loud DAMN!

God's Peace to you Pam,

Mary Jo

Re: bone mets "too many spots to list"
 

Dearest Pam, Hate that news but keeping your recovery foremost in my heart. Keep brething deeply and believing that the TCH is going to work. I echo everyones thoughts about this fight...you're in it to win. You are strong, magnificent in fortitude, and walking the path to obliteration of those mets!
Sending you prayers,
Vickie

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TCH - pretty potent. Should be very efficient at butt kicking! If you don't get pretty quick response (2-3 rounds) ask about Abraxane in place of Taxol. Keep us posted!!

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Pam,

I also send you a very big hug and my prayers for you and all the sisters that are going through difficult moments right now.

All my love,

Paty

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Pam,

I am also sending big hugs and prayers your way from the Great White North.

all the best
caya

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Dear Pam. I hope the new combo will wipe everything out! Please continue to give us news. Sending hugs. Michka

Re: bone mets "too many spots to list"
 

Thank you for all of your kind thoughts and prayers.

After yesterday's 1st TCH treatment I feel pretty good so far - no s/e, except I slept a lot yesterday. I refuse to take benedryl so that wasn't it. But I did have acupunture after chemo so maybe that impacted the sleepiness. Then when I went to bed I couldn't go to sleep right away & worried that the 10 mg of dex was going to keep me up so I took an ativan and slept well.

I told the acupunturist about the many bone mets & he used some points that are specific for bone health/grow. I'm new at this acupunture - only my 3rd treatment so I don't know if anything is changing yet, but I'm planning to keep going with it for a few months anyway to give it a good try.

By the way I'm not having any pain that I can identify as 'bone met' pain. Only some occasional aches that I attibrute with to muscle strains, aging body, sleeping wrong on a shoulder, etc.

I'll add my "DAMN disease" voice to your comments as well. My cousin who I'd just visited in CA emailed me in response to my news that she stomped around her whole house saying damn, damn, damn... when she read my news. (Sorry, Joe, I've gone way over my quota of cuss words in print)

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Pam
I too am swearing after reading you post...but positive thoughts are there that the TCH will kick butt, kill cellls and leave you with good news. I agree that if the T isnt working, maybe a switch to Abraxane...some times you just have to make the perfect cocktail to get that big response! If they open a trial for T-DM1 that you qualify for close to me here in Illinois, you are welcome to come stay with me! Sending love and prayers Pam....tomorrow will be a new day!

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Dear Pam -
Adding my prayers and positive wishes to all the otbers. Throwing in a few 4 letter words as well for good measure.
"When the going gets tough, the Tough get going." I always like this old saw - it does have relevance.

Are you doing anything special with your diet? Convenience foods are not good for cancer fighting. Fresh, fresh, fresh. Cut fats and sugar. I am sure you do these things, but sometimes we need to redouble our efforts.

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Pam,

I dont' blame you for asking for more specific information regarding your scan. The more information you have the better equipped you'll be to make decisions about your treatment.

I'm praying for the tch combo to blast the cancer cells.

Joan

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Add my thoughts and prayers to the list, Pam. I am so sorry to hear your frustrating news. All of us here know how scary such news is, but we also know you are one of those amazin' Amazon warriors! Also, I wonder, since you are in Minnisota, if you are Scandanavian? All my paternal great grandparents came from Sweden so I am half Swede. I know "stubborn" is a descriptor for Swedes. (At least my mom, who wasn't Swedish, used to say when I showed a stubborn streak, "Stubborn--just like your dad!") Stubborn makes good fighters! And we don't give up! Even if you aren't Scandanavian, you are a fighter, so hang in, know we are all praying for you, and sending our love and best wishes. Hugs, Tricia

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Pam -

You are such a warrior. I so love your spirit. I am not a "cussing" woman but I agree this is one damn disease. There is another word I hate to hear used these days, but I broke down and bought some biking socks the other day because they so express my feelings . . . they are pink and say "CANCER SUCKS" on the cuff. I want to make sure all the car drivers who see me when I'm out riding my bike know just where I stand on the matter!


Love, Alice