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Re: Who do I call, what do I do?!!!
Hi Brenda, I am going out-of-network to COH for my femur surgery. I did ask him about surgery and Tykerb...he said I'd have to ask my onc. (He wouldn't go there.) But I sure don't see how it would hurt from what I've read so far?
I did put a call in to Dr. Slamon's office today, but didn't get a call back yet. But thanks for sharing your story with me...at least I see you had no problems with it. I'd sure feel better about this if I could add something to the Herceptin till my hip healed. My onc just likes to refuse everything...I can't believe a word she says. It's always about saving money and not me! I need my onc to authorize it or it can't happen. This is so frustrating.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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