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12-17-2007, 10:57 AM
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#21
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Dear Charlotte...
Please accept my condolences for the loss of your Angel Father, my heart goes out to your entire family. I shall keep you in our prayers as your family and you move forward through this very difficult time. Sassy made me cry reading her post, it really hit home as I read it and I could have not said it better. May you find comfort with what he has left you all with and may his many wonderful memories keep him alive in your hearts & minds forever. Prayers and Blessings coming your way. As far as volunteering, I think it is a magnificent way to give back and to keep Dad's spirit circulating. I am sure he would be so honored to see you doing that in his memory!! Love & hugs>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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12-20-2007, 08:03 AM
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#22
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Senior Member
Join Date: Apr 2006
Posts: 131
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First thanks to all for posting in response to this....We buried my father Tuesday.. My mother is like in a daze, but she does have and will have the rest of the family's support..
I come to this site for comfort, to ask questions and for the vast knowledge of information that is shared ...
By way, I have not find the book from hospice that was mentioned in one of the posts.. I will see if I can find it soon... If not , I will go to the hospice office and ask for it .
Thanks again to all, it brought me a lot of comfort and caring to read all the posts...
Last edited by charlotte; 12-20-2007 at 08:33 AM..
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12-20-2007, 08:18 AM
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#23
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Charlotte
My deepest sympathy and prayers to you and your family in the loss of your Father.....your Mom will need extra support at this time, please take care of yourself too...you are in my prayers....you have a special angel looking on you from above.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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12-20-2007, 12:46 PM
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#24
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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I'm sorry about your dad, and it's hard this time of year when so many people are celebrating. We lost my dad in 2002 to bladder cancer. His last few months were difficult, but we were able to express our love for him and I know it helped him. Please take good care of yourself during this difficult time.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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12-20-2007, 02:09 PM
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#25
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Dear Charlotte,
I am so sorry to learn of your loss. I lost my Father when I was 33, and he was 63. The loss of a parent leaves a bit of a tear in our heart. It becomes less painful but we are always mindful of their absence. I know that the time will come when I will meet my Dad again, that he is at peace and is watching over me and all our family. That is what I hope you will come to feel and it will surely comfort you greatly.
Try to remember, Charlotte, that are truly blessed to have had such a wonderful man play such an important role in your life. Please try to focus on your good fortune, as tempting as it is to contemplate what has been taken from you. Celebrate your Father's life and his part in yours.
May the love and caring of many embrace you and somehow lessen your sorrow. Others are truly touched by your words and your circumstance. And, please, remember to take care of yourself! As your Father would want for you. He was a part of bringing you to Life and surely wishes for you to go on enjoying the gift he gave to you, enjoying each and every day, not sacrificing a single one...
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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12-21-2007, 11:07 PM
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#26
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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I am so sorry for your loss. You are in my prayers..sherryg
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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12-22-2007, 08:32 AM
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#27
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Charlotte
I am very sorry about the loss of your father. I lost my father in 1991 from a heart attack in his sleep at age 57. I think of him often and all the things I never discussed with him or that I did not have a chance to say goodbye. It is so difficult to see your parents ill and the loss is so hard.
I am thinking about you and I am sure you have the courage to get through this - its so hard.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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12-22-2007, 10:06 AM
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#28
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Charlotte,
I was sorry to hear about the loss of your father. My thoughts are with you and your family.
Barbara H.
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