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Old 06-13-2007, 09:19 AM   #21
Joy
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Location: Ft. Collins, Colorado
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I also think

You should appeal because your doctor recommended this drug for good reasons and efficacy is a big one. I would talk to the doc again and see how he can help with a letter of medical necessity backed with research. Also if you have a nurse advocate within your insurance company or can find one if they have a program, and many do, for this. Then you have like a case manager who can talk to real individuals like medical directors, etc. who can say that this treatment can be approved.

I'm not trying to be a bossy boots, Sheila, so forgive me. I just want people to get treatment with drugs that have been developed for the sake of TREATING people. You are a fesity gal and I know you'll do what YOU need to do and I know that you will do just fine.

Hair loss stinks, I've done it 3 times. the only good part is that it is so exciting to get fresh new hair. Have your sense of humor about it and cry if you need to and come to us to just kvetch about it.

best wishes and losts of love headed your way!
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with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 06-13-2007, 03:45 PM   #22
tricia keegan
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Smile Thinking of you Sheila!

Sheila just wanted to wish you good luck for tomorrow and send lots of cyber hugs all the way to you! I hope the side effects are minimal and the treatments work their magic...hey why stop at the wig?? give your self a complete make over and have lots of retail therapy
(always works for me!)
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 06-13-2007, 06:07 PM   #23
Becky
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Sheila

Taxol is the same active as Abraxane, just solubilized differently. It is still a great combo with Herceptin (and Avastin). Take tumeric (curcumin) or eat curry as it helps avert Taxol resistance and has proven syngergy with Taxol. It is not an antioxidant so it won't interfere.

I will be thinking of you dear friend.

Love and a hug
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 06-14-2007, 08:22 PM   #24
Odette
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Come NED Come!

Dear Sheila,

Hugs and prayers are going your way,

Odette
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May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment

'One does not get to choose one's adventures'

I'm experimenting with my diet, using green tea, flax seed curry and olive oil

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