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06-17-2006, 01:10 PM
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#21
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Maryanne
You never cease to amaze me...what an inspiration....please keep posting...we all need to hear from you. You are a beautiful person....your children are lucky to have you for a mom....you always see the beauty in things...even this!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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06-17-2006, 01:16 PM
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#22
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Senior Member
Join Date: Sep 2005
Posts: 49
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Mary Ann,
You are such an amazing lady and an incredible inspiration to us all. I continue to pray for you and your family and may you continue to get stronger every day. Love and hugs.
Petesmom
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06-17-2006, 03:38 PM
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#23
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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I am so glad you had this wonderful evening and day for you deserve this and so much more. I have said this before but it bears repeating, you are an inspiration to us all and such a wonderful role model. It is you who are keeping us all sane, informed and you have given us all the fighting spirit you so strongly possess. Sending all good wishes your way.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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06-17-2006, 07:17 PM
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#24
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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You have the most wonderful spirit. This attitude is going to get you through without a doubt. It sounds like you had a wonderful day. My little girls birthday party was today and we had some of those scented bubble too...they are too neat...sherryg683
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06-17-2006, 11:12 PM
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#25
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Dear Mary anne,
Today I cried at my son's graduation from High school and now I cry with joy at your strength and pleasure from the simple things. Hallelujah! You are back in control...you go girlfriend...stay in charge, get your rest and before you know it you will be back with your angel babies!
Love Kim from CT
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06-18-2006, 01:34 PM
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#26
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Maryanne.. You are in inspiration as you cope with the mother of all side effects from chemo. I have given up booze, but I lift an ice cream cone in your honor. Mary Jo
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06-18-2006, 03:01 PM
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#27
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Livestrong Maryann, you are amazing!
Daer Maryann,
When I was dx and later found this site, reading your posts gave me so much hope and power. Everyday when I logged in I was looking for your post first. Your courage, your achievements, your beautiful face gave me hope to stay strong and fight this terrible disease. I'm with you every second for this new battle and I know you will add to your success story with another victory soon for others who need hope and courage during difficult time.
LiveStrong for all of us.
Big hug,
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06-18-2006, 03:40 PM
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#28
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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You helped me ...
... this week as I have been in the U of W hospital with a lumbar drain to attempt to take care of excess cerebral/spinal fluid. The worst side effect of this was the headaches that I still have to fight through.
So, I am VERY happy that you have had some good news this week, as you were in my thoughts a lot as I lay in my own hospital bed with the drain and IV lines to deal with. At least I amback in my own bed and I wish the same for you as soon as possible.
I can imagine how short on sleep you are after my stay. They wake you up SO often for monitoring - more than I was given to understand when I went in, but that also depends on how things are going.
REST WELL, sweetie! And have fun with the "toys."
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-19-2006, 11:06 AM
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#29
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Senior Member
Join Date: Sep 2005
Location: Central Valley, CA
Posts: 73
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I love your positive attitude. You are truly amazing and an inspiration to all of us. Still sending positive thoughts and prayers for you ....
Helen
__________________
- Diagnosed May 2005 8 months after giving birth. Stage IV due to a single liver mets.
- Carbo/Taxotere/ Herceptin combo for 6 months
- Herceptin/ Navelbine
- Recurrence on the same liver spot in 7/07
- Liver resection 9/07
- Tykerb/xeloda 10/22/07
- NED since 9/07 and continued Tykerb/xeloda
- PET/CT in May 2009 show small spot in lungs. Continued Tykerb/xeloda
- PET/CT in Aug 2009 shows progression on lung nodules (slightly bigger)
- Onc considering Taxol/avastin
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