Friday June 16 - madubois63
 

Hi everyone!! I had such a great day today. Actually it started last night...the nurse unhooked me and let me sleep without the IV hook up - first time in 11 days!!! Felt so good not to have to fight with the pump in the middle of the night. The doctor came and did his rounds this morning and all is good. At one point during this past week, he wanted to put a chest tube in me, and that is not even a question now. My lungs are clearing up and I am not using the oxygen at all. The Hickman Catheter site was pretty angry looking and he kicked around the idea of moving it. Ugh - NO. If it had gotten taken out and moved, it would have to go on my left side which is where my port is and my reconstructed breast. I had a tram flap done, which means the breast is a live muscle, and I would loose it. There is no way I would consent to moving the Hickman unless it was totally infected. This doctor doesn't know me and doesn't realize I plan on having a life after this!! Anyway, today the site looks much better and he is not even considering moving it (like I would have let him???). I just needed a few antibiotics, but for the most part I have been off the IV all day. The best part of the day...the doctor gave me "roaming rights" today!!! I have to wear a mask, but my Mom and kids came and took me outside. we ate ice cream and sat by a flower garden. I saw dragon flies and bumble bees (I may not have ever noticed them before, but today I saw everything). My mom brought along a present I received from someone (from cyberspace) and it is AMAZING. It is a beach bag FILLED with bubbles, silly putty, a slinky, coloring books, crayons, puzzle books, a tiny bowling set, the coolest pink flamingo with sun glasses and holding an umbrella drink, a breast cancer bear, a hall pass to give to the nurses, a silly straw, a puzzle and so much more. My son and I played cards while my daughter drew all over my huge window with "window markers." It was so much fun (I'm playing with the slinky now), and the bubbles smell like cotton candy - how cool is that?? Anyway, your replies are keeping me sane. The support and love I get from you guys is just AMAZING. I knew I found a special place when I found this site, but I just can't put in to words how much you all mean to me!! Thank you so very much... ..·´¨¨)) -:¦:-
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-:¦:- ((¸¸.Maryann -:¦:-´´

Dear Mayann

It is so wonderful to hear from you and you sound so well. You must realize we also found something very special when you joined the list. Keep well and post when you can.

love
Lindaw

Your smile is coming through LOUD AND CLEAR!!!!
 

I hope you continue to have fun filled days. Take care and God bless.

Rhonda

Maryann,

You are such a wonder-- your post sounds like you're having such fun, and we're all missing out! I am very happy to hear that you're not letting your medical adventures get the best of you.

Happy roaming,
Jen

Hi Maryann! It really does sound like you are enjoying yourself, although I bet there's a million other things you'd rather be doing! I too come here every day to check on you (stalk you really!) and your spirit uplifts ME and makes ME appreciate those bumble bees too! See the effect you have on people? :) I'm so happy to hear you are doing so well, you truly are an inspiration to all of us.

Hang in there, soon enough you'll be shopping at the mall with your daughter all over again - now aren't you looking forward to THAT? (I can say that as I have a teenage daughter too!)

Take care and update us all often, we love to hear of your adventures.

Maryann:

You are an inspiration. Your post made me cry. Noticing the fireflies-- how beautiful. I am praying for you and your complete recovery.
Keep smiling and fighting.
Your cyberspace friend,
Monique

Maryann!! Things sound like they are going so well!!!! It just warms my heart to hear how well!! Thank you for keeping us updated it really means alot to us too!
Tammy

from a man's point of view.....
 

Maryann, I find your courage and inner strength totally humbling, as I did Linda's. I have seen grown men cry for a lot less and you are special!
Let's focus that energy on recovery..... remember where your friends are when you need them. Thing about you.... Al

MaryAnn, I have said it before and will say it again...your truly AMAZING! I just smiled and laughed when I read the part about your doctor thinking about moving your Hickman port...and how he DOESN'T know you very well. lol

No he doesn't...but I bet he is getting a good idea by now. :) I am so glad to hear it cleared up and doesn't have to be moved. Its also fantastic that you didn't have to deal with that darn chest tube either. Yeah! Sounds like your well on your way girl.

I am so glad to hear you got a reprieve from your IV...that must of been a REALLY nice change!

Your just unbelieveable. I swear...I can almost hear you laughing and see you smiling through your words. Keep that aweseome sense of humor you have...and continue to blow your doctor away. lol

Keep us posted...and behave yourself. hahaha

Sending you warm & healing thoughts.

Chelee

Maryann;

I am so happy you are up and about and able to be with your family!!! Not knowing what lay ahead it is wonderful that you have had all good news. Thank you so much for posting and keeping us involved in your treatments....have you got a camera?

Cathy

Maryann,

So glad you're doing so well! When reading your description about your gift from a cyberspace friend, I could just imagine everything so well. You are truly an inspiration. Keep fighting!

Maryann,
You are an amazing woman and a true gift to this site. It was so uplifting for me to read your post this morning. It must have made your children's day to have the opportunity to be with you yesterday and actually take a walk outside. As I said before, I always look for your posts and think about you everyday. Best wishes and I hope that you continue to have a positive outcome.
Barbara H.

Maryann,
I love your positive attitude and the way you appreciate every little small thing that comes your way. You certainly are an inspiration! Keep up that spirit and healing health girl!

I so enjoy reading your posts. Enjoy is maybe not the word. Inspiring is probably more accurate? You are a wonder and I am praying for you.
Janet

It is so reassurring to read your post. I know a little about what you are going through, (just a little) a friend of mine had luek. but she hadn't had to go through all the breast cancer stuff first. I visited her each week when I went in for my herceptin. It is truely amazing what you are able to handle. I really like what you said about having life afterwards. That's how a lot of us feel. I may be stage 4 but I'm not going anywhere soon. You are probably the most read post right now, we are all following your every word. You are in our thoughts and prayers. Patty H

I'm sure glad you are on track with it all, Maryann. Can you imagine how things might be if you didn't have your knowledge and determination? Ay-yi-yi. Your perspectives are so interesting.... Hope progress continues!

A.A.

Great!
 

Maryanne,
When I read you were given roaming rights - I thought you would have gone off to DisneyLand! They don't know you! So wonderful to read your update.
Will continue my job here - hold on to the "Green" baby....

Sending lot of love!

Jean

Maryanne,

I too am loving your posts & your spirit! Thank you for reminding us all how precious the little things are. We all love you and you have our continued prayers.

Mary

Dear Maryanne, I cried harder reading your happy post today than even with all the sad ones! But they are tears of joy, for you are once again proving how strong and unquenchable your spirit is! You remind us all how beautiful life is when you really learn to appreciate it. We are all stronger and more appreciative because of your posts. Thank you so much for taking time for us, and remember we are all praying for you to get better every day. Hugs, Tricia